The story of Miranda
Our son, Wesley, was recently diagnosed with Alkaptonuria. He presented with symptoms that just didn’t fit the mold to any one disease or condition.
After 10 weeks of endless tests, 2 surgeries, and many appointments we finally received the phone call that gave us the diagnosis.
We are working hard already to bring awareness to our son’s disease. Our little guy is still so young so we hope that there will be more research done on Alkaptonuria. We are doing our part to share his story and to shed light on Alkaptonuria and the fact that there are so many other rare diseases that deserve research.