Wegener’s Granulomatosis _ Melbourne

The story of Freda

My name is Freda and l have a rare medical condition called Wegener’s Granulomatosis / Micro Polyangitis also Von Willebrand’s Disorder all these disorders are very rare and l have no contact with anyone in melbourne to discuss or communicate with patients that have the same conditions as l have. I have noticed that there are lots of countries that hold this special day but noticed that Melbourne don’t have anything how and who do we need to contact to start an awareness day here in Melbourne l would be very interested to find out some information. Regards Freda