The story of Myles

My son Myles, has 4H leukodystrophy otherwise known as POLR3 related leukodystrophy, it is an ultra rare disease of the brain. Whilst 4H has took his mobility, his hearing, his fine motor skills it has never and will never rob him of his natural joy for life. He is the most smiliest happiest boy with huge levels of determination. 4H leukodystrophy consists of hypomyelination, hypogonatropic hypogonadism and hypodontia.