Regaining hope

The story of Susan

When I was first diagnosed with Retinitis Pigmentosa, the words that hit me the hardest were “no treatment” and “no cure.” I basically took those words and translated them as “no chance” and “no hope.” There’s a significant feeling of being powerless that hits you in a situation like that. But as time has gone on, I’ve gained support from friends and family, enrolled as a patient at a research university, and found wonderful organizations like the Foundation Fighting Blindness. And on days like today, when awareness is raised and stories are told, I certainly feel like I’ve regained my hope.