The story of Helena

Helena spent the first years of her life being seen by almost every specialty and having numerous tests run. Just before her third birthday she was diagnosed with GABRA 3 Neurodevelopmental Disorder. This rare gene mutation causes her to have intractable Epilepsy, hypotonia, and developmental delays. She is also Autistic. This rare condition means that Helena has to work especially hard to learn things that come so easily to her same age peers. She’s a friendly girl who loves music, Word Party, and running outside.