The story of Kasey
I am 44 year old female. In the last two years, I have been diagnosed as having not one, not two, but three rare diseases. I was first diagnosed with Alpha-1 antitrypsian defiency type ZZ liver and lung affected, then Ehlers Danlos Syndrome, and most recently and most devastingly Intraheptic Cholangiocarcinoma. I have passed the first two down to my only child. She is the reason I fight and pray for research and cures!