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On a limb and a prayer: Living with a rare disorder

Three-year-old Akshaj sounds mature for his age. But his precocity may have come at a significant cost. Akshaj is suffered from Klippel Trenaunay Syndrome (KTS),… Continue reading On a limb and a prayer: Living with a rare disorder

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The Years That Passed Me By…

My autoimmune problems started when I was really young having a lot of hereditary illnesses. I’ve had Reynauds for as long as I can remember.… Continue reading The Years That Passed Me By…

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My life As a Walking Taboo: Living With Malodor Disorder

I suffer from a malodor disorder called TMAU. Although I’ve been aware of my disorder for fifteen years, I’ve never spoken about it with anyone… Continue reading My life As a Walking Taboo: Living With Malodor Disorder

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It is just a vitamin

6 years ago I was a healthy hard working mom of 2 teenagers. Then one day when I was at work I realized I could… Continue reading It is just a vitamin

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My Child has just been diagnosed with a fatal disease! Now What?

My Child has been diagnosed with a fatal disease, Now What? Many of you will understand and remember well the moment you were told the… Continue reading My Child has just been diagnosed with a fatal disease! Now What?

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Kidney Disease

When I was a born I was diagnosed with the kidney disease it was sad i was in and out of hospitals my whole life.… Continue reading Kidney Disease

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Kidney Disease

When I was a born I was diagnosed with the kidney disease it was sad i was in and out of hospitals my whole life.… Continue reading Kidney Disease

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Jessi’s Journey

I have always heard your teenage years are the hardest. If I had only known how horrific they would soon become for me I would… Continue reading Jessi’s Journey

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WHEN I WAS DYING

WHEN I WAS DYING ….. I shouldn’t imagine there are many people who are still here to be able to tell a tale with the… Continue reading WHEN I WAS DYING

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