The story of jamie
In April of 2010 I went to the hospital because I had a cramp in my right calf. When they did un ultra sound they found a clot. After a week in the hospital I found out that I had a protein C & S deficiency and that there was no cure nor would I live long enough to see one. From my understanding there aren’t enough people that has it for there to even be a study on it. I’m on blood thinner shots, 6 per day and 42 pills. I have scans done every 3 months. In December of 2013 I had 80% blockage from head to toe. Even in the vascular veins. I had an IVC filter put in so that I could have a small surgery and even it was full of clots. This disorder will effect all or my organs at some point and time. The doctors always tell me to keep my affairs in order because I can walk from one room to another and fall out dead. So far I’ve have a sudo brain tumor, type 2 diabetic on shots, 2 heart valves that are leaking, nueropathy, and early stages of prakinsons, but can’t have surgery, or a bone maro transplant and my vision is poor, and some scaring on my kidneys and lots on my lung where I still have one small clot. But I get up and go to work everyday. Sometimes I have to come home but I still try. Now they tell me that my body is making to many red blood cells and I could have a stroke. I have scans coming up in September 2014 and we will see if the blood clot that’s above the IVC filter is still there and the ones in the filter. Obama care didn’t do much good for me since I got this disorder. I had racked up so much in medical and prescriptions that I write a check for $5 to 35 different medical places to start paying them back. I finally got disability Medicaid but that doesn’t pay for the test strips or insulin pens. I don’t know of any support groups that is out there because there aren’t enough people that have it I guess. I’ve made it farther than they ever said I would. I have been blessed with many prayers and on the days I just can’t go anymore God sends me down some extra strength. I don’t give up easy. I keep fighting everyday. There are people out there worse than me so I keep going in hopes that I can show them you can’t give up. This is my story