The story of Staci
My son Nicolas had a condition called CHARGE Syndrome. It’s .1 to 1.2/10,000 people have this condition. Most people with CHARGE have a simmeler facial shape. Each letter of CHARGE stands for something different. In Nic’s case C is Colobomas, H is heart (Epstein TV anomaly ) ,A is atresia of caonal, R is retardation (mental or physical),G is genitals (deformed or almost non existent ), E is Ears he had deformed inner ear and off set ears. He wasn’t suppos to live past 1 year. This past Monday he turned 20.