Natalie Hope’s Journey with CDKL5

The story of Sandy

Natalie was diagnosed with CDKL5 at the age of 7. She endures challenges daily like seizures, CVI, ADHD, Hypotonia, and is severely cognitively impaired. She is my hero, and I feel so lucky to be her mom. She has a pure loving heart and a smile and giggle that can melt anyone’s heart. Hope, Love, Cure….CDKL5