My Story with Chromosome 18q Deletion

The story of Sydney

I was born April 7th, 2000. I was just a healthy baby. After 4 months, my face started turning blue and I was really sick but my parents didn’t know what was going on. So I had to go to the hospital. The doctors said to my parents that I was just sick and my mom said no there is something going on! I got blood tests and the doctors found out I had a chromosome disorder. The doctors said to my parents that I wouldn’t be able to walk or talk my whole life! When I was 3 years old, I got help talking and walking from my mom’s best friend who is a speech pathologist. At four years old, I proved the doctors wrong and I started walking and talking. I’ve learned from when I was younger, “I am Sydney and I am UNIQUE!” I’ve always thought that having a disability was not right and was the bad part of my life. But now, I got a high school diploma in 2020, I am a self advocate for Chromosome 18 Research and Registry, I have an instagram account called @disabilitiesunite21! It’s an account for people with disabilities to come together and make friends! Just remember, everyone is equal no matter if you have a disability or not!