Living with Angelman Syndrome-UPD

The story of Conner

Conner is 7, he went undiagnosed until he was 5 years old, when the pandemic hit it took us 4 months to get our genetic test results back. Conneris nonverbal but communicates in so many different ways. One day he will make his voice heard. He struggles daily with sleep issues, epilepsy, socializing, eating, among many other things that come with AS. BUT he always triumphs. He has proven everyone wrong even some doctors. He has a strength and determination that is inspiring. He is the light of so many lives. He will change the world some day.