The story of Joelle
Hi! I’m Joelle! I live in Ohio and I’m 33 years old. I have KTW syndrome and the genetic pick 3 for cloves. I’ve had over 40 operations which have corrected a lot but u still have a ways to go. Currently I’ve been on crutches for about 21 years and have a right flank contraction with active open wounds and ulcers. My Kt has spread to my spleen and liver and I also have scoliosis. I also have a 20+ lb mass in my right hip. And port wine lol I’m very interesting. I do work full time and I try to stay positive and hopeful for new medication that may help me and others like me. I enjoy traveling when I can and concerts!