Jolee’s Beckwith Wiedemann Syndrome Store

The story of Jolee

Jolee was diagnosed with a rare syndrome called Beckwith Wiedemann Syndrome disorder only 1 in 11000 children get it. It is an overgrowth of organs tounge, increasing chances of cancer and low or high insulin. She already sadly had to have half her right kidney taken and part of her left top liver due to suspicion of Cancer. Her condition is high risk of cancer.