The story of Kari

My daughter and I were both diagnosed with Platelet Storage Pool Defect in 2011, a life threatening bleeding disorder. Ever since our diagnosis, we’ve been fighting to keep her safe and injury free, all while spreading awareness and making people www.pspdaware.com!! I’ve been blogging (http://atouchofscarlett.blogspot.com) about our experience with this rare disorder for over a year and am constantly trying to reach out and find others affected by this disorder.