The story of Samuel
Sam is a 7 year old boy battling a very rare brain disease called Vanishing White Matter disease (see www.facebook.com/samvsvwm or www.vwmff.org for more). Vanishing White Matter disease (VWM) is untreatable and terminal and has left Sam unable to walk, stand or even crawl, with slow speech and limited motor function. Despite this Sam is pure joy, and finds happiness in everything life has to offer.