Emmett Journey with Trichothiodystrophy

The story of Emmett

Emmett was diagnosed with Trichothiodystrophy at ten months old. Emmett is now three years old. He is one of the more saver cases. Each kid is effected differently. Emmett has cataracts, chronic kidney disease, dry skin, tube feed, brittle hair and poor teeth. When sick with a common cold he has to go to the ER and get repertory help. Despite his struggles he always has a smile on his face and never stops fighting!