Breaking Isolation – Living with MRKH

The story of Anja

I am a 37yrs old woman living with MRKH. MRKH gets 1:5000 girls. MRKH usually gets diagnosed in your teenager years, the most vulnerable of time. Getting told to be born without a uterus and a vagina is a blow hard to imagine, it shaked the very foundations of my identity as a woman. As so many other women I went into denial and hiding and years of isolation in which I felt I am not a part of this “normal” world, part of this game that binds people together, the game called life, rooted in our sexuality, in our most human condition – the condition of physical, sexual beings. I am sharing my story to stand up with all the other beautiful and strong women out there, fighting their daily battles with MRKH, and to help breaking the shame and isolation often accompanied by MRKH. I hope for the future that the medical support and treatment of women with MRKH will more strongly recognise the immense psychological impact of this condition and that women are encouraged to be proud and okay with the way they are. I am very grateful for all the medical developments that give us as women the chance to live a normal life. Yet, equally important I find the message every woman diagnosed MRH should receive: You are enough, just the way you are.