Arthrogryposis Multiplex Congenita

The story of Gavin

Hi, my name is Gavin . I am 16 months old and 1 in 3,000. I have a rare joint condition called Arthrogryposis Multiplex Congenita. It’s commonly called AMC because it’s hard to pronounce and spell. After spending hours and hours in splints and with PT and OT, I now have straight wrist and can move my arms up and down. My biceps are getting stronger every day and hope that one day I will be able to bend them to eat. Right now I use a high chair or furniture to lean my arm on to eat food. I love books, running and playing with my big sister and cousins.
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