Aggressive Fibromatosis

The story of Caitie

I have aggressive Fibromatosis or Desmoid tumors. My left arm is riddled with tumors. I’ve had 14 surgeries, IV and oral chemotherapy, radiation all to keep from losing my arm entirely. Without organizations like this and the Desmoid Tumor Research Foundation (dtrf.org) I’d be at the very least one armed, more likely dead.