The story of EHSAN

My name is Ehsan
I was born in February 2014
When I was born, I was suffering from Cleft palate and I had four surgeries, including in the ear and teeth .. after my birth I take my food by a gtube of feeding from the nose and my weight decreased a lot, and I was late in crawling, sitting and walking, and I still struggled with speaking and struggling with learning and in wearing my clothes. I cannot rely on Myself a lot, and my father suffered from a delay in the diagnosis, and we are still looking for a treatment for the symptoms and health problems caused by this disease, including delayed growth, nerves, brain and digestive system. The disease that I suffer was diagnosed only 8 months ago .. We will remain strong as the usual rare everywhere