The story of Boussac Marie

I am 26 years old.  

My genetic disease was found two years ago in France.. 

I am different. . 

Every morning i work in  an Association for poor people. I give them food and clothes .

I ride once à week.  Dune is thé name of my horse. 

I share my new Life with my boy friend :Samuel.  

I hope in thé research in USA and in France .if it s not for me .. it will be for thé children of PPP2R5D. .

That is  my Life.. .

Marie .