EwenLife Rare Diseases


About EwenLife Rare Diseases

EwenLife Rare Diseases is a non profit that release video patient stories where patients and families share their tips to live on an everyday basis with rare disease and disability.
On the 28th of February, we use to highlight the work of an artist on rare diseases. But also to release many video patient stories with many volunteers.

Partner details

Laetitia Domenighetti
E-mail partner Visit Partner website