Café y tertulia científica con el Dr. Luis Figuera, quien es experto en enfermedades raras (ER). Platicaremos en un ambiente...

Pledge Your Support for Rare Diseases! Rare Disease Day is held annually on the last day of February, it is...

Los invitamos al III Foro Internacional de Enfermedades Raras Día:           28 febrero 2023 Hora: de  9:00 am...

In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...

To mark Rare Disease Day today, we are pleased to release the now 10th episode of our podcast series, “Rare Diseases and...

On February 28, at 4:00 p.m., we will hold a webinar “Rare diseases in the practice of family doctors: what...

ALAN and the council of Hesperange invite to the concert “Rare Music 4 Rare Diseases”, on the 24th of February...

MONOLOGO EN STREMING “RARO YO”

In occasione del mese delle malattie rare, i volontari e le famiglie a contatto con la Sclerosi tuberosa hanno pensato...

18 February, 2024, it will be a car free day in Kigali-Rwanda, so we will take that opportunity to make...

Ogni anno scolastico, nella Scuola dell’infanzia “Gli Aquiloni” Istituto Comprensivo “A. G. Roncalli” Rosà (Vi) vengono proposte all’interno delle sezioni...

Delve into the complexities of apraxia of speech with a distinguished panel featuring Dr. Angela Morgan, Dr. Ruth Stoeckel, and...

«La Conversación» es una serie de entrevistas a destacados científicos médicos dedicados con pasión a mejorar la calidad de vida...

«Tenemos todo el tiempo para escucharlos» será un evento en el que, por primera vez en todo el mundo y...

L’Institut Imagine annonce son prochain #GénéTalks : le rendez-vous incontournable des passionnés de génétique   L’Institut Imagine, leader mondial dans...

Un changement de lettre dans le code génétique peut faire basculer une vie. Une mutation suffit à altérer un processus...

The Lupin Neurosciences team worked with people living with NDM to develop the #LetsMove4NDM challenge to raise public awareness of...

#LightUpforRare at 7:30pm

Nous lançons le challenge #partagetescouleurs, cela consiste pour la journée internationale des maladies rares de partager jusqu’au 28 février, –...

Join us on Rare Disease Day, Thursday, February 29 at 11:30 a.m. ET for the #RAREis One webinar to hear...

OVERVIEW On Rare Disease Day 2023, Rare Diseases International (RDI) invites you to “#SeeRare”, a virtual event showcasing the breadth...

We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...

This February, Lupin Neurosciences, a division of Lupin Atlantis Holdings SA, embarks on a mission to raise awareness for Non-Dystrophic...

Evento finale della campagna di sensibilizzazione in cui ripercorreremo le iniziative del mese dedicato alle malattie rare e ci proietteremo...

Giovedì 1 febbraio dall’Auditorium del Ministero della Salute UNIAMO – Federazione Italiana Malattie Rare lancerà la campagna #UNIAMOleforze: più di...

A 1ª Corrida Nacional Inclusiva dos Raros é uma iniciativa da Casa de Saúde Nossa Senhora dos Raros, da Associação...

Patients with rare diseases followed in our Medical Genetics Clinic and families will be invited to the event. There will...

Rare diseases awareness in schools: “10days for rare (10DAYS4RARE)” Sharing lessons on rare diseases in schools: “Living with a rare...

Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...

ZUSAMMENSPIEL ZWISCHEN ELTERN, ÄRZTEN UND WEITEREN AKTEUREN Der Förderverein für Kinder mit seltenen Krankheiten feiert sein zehnjähriges Jubiläum und lädt...

Wissenstransfer Seltene Krankheiten: ❤️🐸 Der Förderverein für Kinder mit seltenen Krankheit feiert sein zehnjähriges Jubiläum und lädt am 2. 3.2024...

Register to attend the 11th Annual Rare Disease Symposium on Feb. 29 – March 1! This is a hybrid event,...

Konferenz und Stände von Patientenorganisationen.

Conférences avec présence de stands d’association de patients

Anualmente el mundo dedica el último día del mes de febrero para pensar en estas patologías. Colombia se une a...

PREMESSA L’evento ha la finalità di celebrare la giornata delle malattie rare. Il convegno intende delinearsi come occasione per affrontare,...

The National Association of People with Rare and Congenital Disorders (RIROSZ) has now organized World Rare Diseases Day for the...

O Evento irá reunir, pacientes, associações de paciente, gestores públicos, profissionais, familiares, amigos e parceiros que se somam em uma...

➡️ 1/15 000 enfant est touché par l’aplasie majeur de(s) l’oreille(s). ➡️ Environ 4 500 personnes en France, car on...

On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...

Falling once every four years, February 29 is the rarest day of the year. On that very day, in the...

Information and sensibilization to rare diseases in terms of public health and ethics.

Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...

From February 27 to March 5, 2023, the MATIO Foundation for the 22nd time organizes a social campaign under the...

A post will be uploaded on a daily basis with statistical information about rare diseases and testimonies from our members,...

CEBRAS MÉXICO Y MUJER MÉXICO en conjunto con el Congreso Legislativo de Quintana Roo, la Comisión de Salud y Asistencia...

Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...

l’Alliance Algérienne contre les Maladies Rares organise en partenariat avec les laboratoires Pfizer une rencontre des groupes de patients des...

We are delighted to welcome you to the 2nd European Congress of Neurology and Neuropsychiatry which will take place on...

Our inaugural congress witnessed groundbreaking discussions, profound insights, and remarkable advancements in the understanding and management of rare diseases. Building...

The Saudi Rare Disease Summit is a unique platform that explore the area of rare diseases and fosters collaboration among...

Jornada nacional e internacional de enfermedades huérfanas/raras, para esta ocasión con el protagonismo de quienes tienen una relación directa con...

Dirigido a profesionales de la salud, estudiantes, pacientes, cuidadores y publico en general.

La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...

3rd International Conference on Rare Diseases: Greek Chapter ‘’Leveraging the momentum for a comprehensive rare disease strategy’’ In the context...

The Red Mexicana de Enfermedades Raras (ReMexER), the International Laboratory for Human Genome Research (LIIGH, UNAM) and the Colaborativa para...

Calvin University, Corewell Health/Helen DeVos Children’s Hospital, MSU College of Human Medicine and Van Andel Institute will host its 5th...

Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...

Patients with Rare Diseses could send happy photos about themseves and were judged by representatives of media for prizes. The...

Join us for an insightful discussion with Dr. Cora Taylor as she shares valuable insights into behavioral interventions tailored for...

Get ready for a deep dive into understanding the roles of genetic counselors, genetic testing, and the array of resources...

A-T RUN

Il Comune di Arenzano illuminerà la torre dell’orologio di Palazzo Sant’Antonio

Arenzano, anche quest’anno, ha aderito al RareDiseaseDay, la giornata mondiale dedicata alle malattie rare che sarà celebrata in tutto il...

Anche quest’anno il Comune di Arenzano aderirà alla giornata denominata “Accendiamo le luci sulle malattie rare” in data 29/02/2024 illluminando...

Palazzo Sant’Antonio

Illuminazione delle mura del Castello dei Conti di Acerra con i colori della Giornata delle malattie rare 2024

Illuminazione delle mura del Castello Dei Conti con i colori della Giornata delle malattie rare 2024, a cura del Comune...

We are excited to invite you to Rare Disease Day 2023 in Calgary on February 26, 2023! If you are...

Desde la Alianza de Familias afectadas por el Síndrome de Wolfram (AFASW) nos sumamos a la conmemoración del Día Mundial...

Scientific Congress with Dissemination and Dissemination of Scientific Research Results for EEC Syndrome. Study of an eye drops for the...

Facilitar el acceso a los recursos especializados; aplicar la cobertura de los tratamientos (más allá de los medicamentos); es una...

le associazioni A.I.D. – Kartagener Onlus ed A.Ma.R.A.M. Aps, celebreranno la Giornata Mondiale delle Malattie Rare 2023 organizzando l’incontro dal...

På måndag lyser himlen upp lite extra över Lilla Amundön när Ågrenska uppmärksammar Sällsynta dagen. Ågrenska gör då gemensam sak...

Ågrenska arrangerar ett festligt Sällsynta dagen-disco för de familjer som deltar i vår familjevistelse den veckan. Dessutom kommer vårt karakteristiska...

The Alamo Quarry Market is participating in the #LightUpForRareCampaign and will illuminate the smoke stacks for Rare Disease Day

ALD Makes Me Blue is a collaborative fundraising coalition among international ALD organizations. It is the “Brain Child” of a...

We are thrilled to invite you and your family to our special Valentine’s event, « All You Need is Love », hosted...

Proiezione del film “Amleto è mio fratello” di Framcesco Giuffrè, fra gli attori un socio di Associazione Italiana Sindorme X...

Rare Diseases Awareness Day activities were held at Ankara University Rare Diseases Application and Research Center with the participation of...

Join us for an evening celebrating Ellce Home’s 3rd year in our downtown Naperville showroom in which we will feature...

A gathering of individuals and families from the rare disease community in the northern region of Malaysia ie Perak, Pulau...

23 febbraio 2024, 17:00 CET Conosciamoci! Raccontiamoci! Un incontro per pazienti CIDP e GBS in collegamento Zoom con il Prof....

Arrío de la Bandera Nacional en el Día Mundial de las Enfermedades Poco Frecuentes.

Our international art contest is organized by the Rare disease network of the René Touraine foundation. It is an opportunity...

IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2023. This year’s theme...

The event puts together patients, specialists and journalists to raise awareness on rare diseases, diagnostic, access and prevention for next...

The ACSN is dedicated to the training of lifeguard dogs and their handlers. Also there will be a demonstration of...

Ask the Doctor About Lymphoma is a two-hour program that combines a presentation by a medical doctor with an extensive...

Presentazione dei progetti delle associazioni di pazienti che si occupano di malattie rare

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...

Let us be together, empowering rare patients and their families to be rare, strong, and proud.

We are gathering at Southwest Mountain States Carpenters Union Local 714 support of Raising Awareness for Rare Diseases.

On International Rare Disease Day 2024 we are asking people around the world to capture a simple clip of something...

Rare diseases are gaining traction as a pressing health priority worldwide. We have now seen the first-ever UN Resolution on...

🇮🇹 #BIKE4RAREDISEASEDAY 2024: Ferrara-San Luca 😎 Torna la social ride dedicata alla Giornata delle Malattie Rare, che si celebra ogni...

In occasione della Giornata delle Malattie Rare (che si celebra l’ultimo giorno di febbraio) domenica 26 febbraio si terrà il...

Bloco do Xulé Xêroso é um evento de conscientização sobre as doenças raras que se aproveita de outra data bem...

Klankjorum zingt het liedje EDELWEISS. Hiervan is een filmpje gemaakt om de boodschap van zeldzame ziektendag te verspreiden via social...

UNA PRESA IN CARICO PIU’ EQUA ED OLISTICA DI UNA PERSONA CON MALATTIA RARA: IL TAVOLO RETE METROPOLITANA MALATTIE RARE,...

Seminar for health professionals, university and high school students, patients with rare diseases, caregivers and the public. Free admission. Limited...

Broadcast of the RDD radio spot – Antena 3 radio for Rare Disease Day in Portugal.

Broadcast of the RDD radio spot – Radio RFM for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – Canal Q for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – Porto Canal for Rare Disease Day in Portugal.

Broadcast of the RDD TV spot – RTP2, RTP Memória and RTP3 – Portuguese national TV channels for Rare Disease Day in...

Broadcast of the RDD TV spot – Sporting TV for Rare Disease Day in Portugal.

Broadcast of the RDD video – Brandstore advertising screens for Rare Disease Day in Portugal.

Broadcast of the RDD video – Centro Hospitalar do Porto, Porto for Rare Disease Day in Portugal.

Broadcast of the RDD video – Centro Hospitalar Universitário de Lisboa Central for Rare Disease Day in Portugal.

Broadcast of the RDD video – Hospital da Luz, Lisbon for Rare Disease Day in Portugal.

Broadcast of the RDD video – Serviços Sociais da Câmara Municipal Lisboa, Lisbon for Rare Disease Day in Portugal.

Broadcast of the RDD video / Posters – Carris buses, Lisbon for Rare Disease Day in Portugal.

Cyprus Alliance for Rare Disorders and the National Commitee for Rare Diseases co-organise the illumination of various buildins. Kick-off event...

An educational program to learn more about a treatment in Cold Agglutinin Disease (CAD). Hear from a patient speaker living...

This is a cake decorating championship in cooperation with Roche Hungária Kft. The main topic is: Show your Colours. The...

Realizar una caminata para llevar el mensaje a más personas

I bambini del catechismo cantano a sostegno delle malattie rare. Illuminazione monumento

ORE 17.15 NEI PRESSI DELLA MADONNINA FIACCOLATA, SANTA MESSA, VOLO DEI PALLONCINI E SUCCESSIVA ILLUMINAZIONE CHIESA

Papa Francesco riceve in udienza privata una delegazione di UNIAMO – Federazione Italiana Malattie Rare Presenti oggi in Vaticano 100...

“Una luz por las raras” es el nombre con el cual la organización del Día Mundial de Enfermedades Raras 2023...

El municipio de #Calarcá se une a la campaña mundial #UnaLuzPorLasRaras iluminando el Edificio de las Empresas Públicas de Calarcá...

El Puerto de Buenaventura se suma a la conmemoración del Día Mundial de Enfermedades Raras. Uno de sus íconos arquitectónicos,...

Campaña de Difusión, actividades recreativas y encuentro personas con enfermedades raras y sus familias. Promovido por Asociación Peruana de Pacientes...

Cambridge Rare Disease Network (CamRARE) invite you to join our community to celebrate Rare Disease Day 2024 at the wonderful...

Dear All We would like to invite you to join us and attend the “CareForRare Support Group” webinar on 22nd...

Our first event in our five-part series launches in honor of Rare Disease Day on February 19. This event will...

Sabato 2 marzo, in occasione della Celebrazione della Giornata Mondiale delle Malattie Rare (29 febbraio 2024), la Fondazione A.R.M.R ha...

We will be flagging off the campaign with the clocking of the 7.7KM run, or a choice of a 4KM...

Carry Hope is the annual rare disease awareness and fundraising campaign of the Rare Disorders Society (Singapore), or RDSS, in...

The House of Rares (Casa Dos Raros) will be opening its doors to welcome the rare disease community, families, professionals,...

A colouring competition will be held from 1 Jan to 20 Feb 2024 for all ages. This is follow by...

Celebration for people with RDs on this special day. We will celebrate by attending to a theatre play on the...

Charla científica que se trasmite por el canal https://youtube.com/@fundacionfupieruy Para informar de manera responsable sobre los últimos avances de la...

Se acerca el gran día ! El 29 de Febrero es el Dia Mundial de las Enfermedades Poco Frecuentes (...

Es un evento dirigido a pacientes y familiares de personas con enfermedades raras; que busca motivar a la población a...

Charla de la Dra. Mattos sobre las enfermedades raras. Escúchanos a través de nuestra radio online https://colegiomedicodepichincha.org/radio/

Charla introductoria sobre las enfermedades raras

Charla Virtual ” PREPARANDO LA PIEL PARA EL MAÑANA ” en pacientes con Malformación Anorrectal y Hirschsprung. Desde @amar.asociacion_padres, queremos...

Rarus Health SPA y FECHER organizará un seminario web especial para pacientes, cuidadores y especialistas de salud. En palabras sencillas,...

Join Congenital Hyperinsulinism International as we gather to share stories and experiences of patients and families with congenital hyperinsulinism worldwide....

The hospital is lighting up for Rare Disease Day 2023!

Choroby rzadkie wcale nie są rzadkie! Zmagają się z nimi miliony ludzi w Polsce i na całym świecie. Dlatego 28...

Share Your Colors and Show Your Stripes on Rare Disease Day! A collaborative group of divisions within Cincinnati Children’s Hospital...

Le 28 Février prochain, journée mondiale des maladies rares, notre association organisera dès 19:30 au Cinéma For&ver un ciné-débat ayant...

The final conference will bring together all the partners that organized events and awareness campaigns during February and will present...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...

Coffin-Lowry Syndrome Association, Romania is organizing a social media campaign to raise awareness on this rare disease. Each day of...

Cold Water Dip in aid of Rare Ireland. Rare Ireland (RI) is a parent run charity, supporting families living with...

Dans le cadre de la Journée Internationale des Maladies Rares, la Fondation Maladies Rares, la plateforme d’expertise Maladies Rares « Est Rare », et leurs partenaires, dont SENSGENE,...

Colorado, join us on the east steps of the Capitol at 1:30PM on February 29th for a picture at 2:00PM...

This campaign is aimed at the public and is a joint action by the pharmaceutical and health companies Alexion, Chiesi,...

For Rare Disease Day 2023, Alexion Germany in partnership with CBT, MSD_Deutschland, Novartis-Deutschland, Takeda, UCB and supported by Ravensburger will...

Public live event in Munich’s city centre in the shopping hotspot Hofstatt on 29 February 2024, starting at 01:00 pm,...

💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ 28 FEBBRAIO – GIORNATA DELLE MALATTIE RARE 💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ Abbiamo pensato ad una puntata speciale per tutti voi: 👩‍⚕️COME SI...

PLWRD and their organizations will organize awareness events in schools, art exhibitions, will illuminate buildings, houses etc.

Per celebrare la Giornata delle malattie rare 2023, ACMT-Rete, associazione di pazienti affetti da Charcot-Marie-Tooth, promuove il concorso «Parla di...

Los alumnos de la materia de Genética y Medicina Genómica participarán en nuestro concurso de redes sociales en señal de...

Panel discussions and clinical presentations for patients and healthcare professionals. The aim is to lead information sessions and fruitful discussions...

La conferencia correrá a cargo de la doctora Berta de la Cerda Haynes y el doctor Álvaro Plaza Reyes, investigadores...

Iluminarea cladirilor, expozitii de fotografie, de pictura, Conferinta nationala Ziua bolilor rare 2023, Timisoara

Join us on Zoom for a Rare Disease Day Gathering with members and friends of the hyperinsulinism community on Thursday,...

Aliados Proyecto Colaborativo Ruta de Enfermedades Huérfanas

Conmemoración Día Mundial de Enfermedades Raras 2023 Aliados proyecto Colaborativo Ruta de Enfermedades Huérfanas Parque espíritu del Manglar. Playón Del...

Conmemoración Día Mundial de Enfermedades Raras 2023 ACPEIM y Universitario San Ignacio

Conmemoración Día Mundial de Enfermedades Raras 2023

Mesa técnica de enfermedades huérfanas de Cali, CIAFER, FECOER, organizaciones sociales del Valle del Cauca y Aliados Proyecto Colaborativo Ruta...

Conmemoración Día Mundial de Enfermedades Raras 2023

Conmemoración Día Mundial de Enfermedades Raras 2023

Iniciativa Pensemos en Cebras México, Fundación Mujer México, Angelman México. 👉Sumando esfuerzos con el Gobierno del Estado de México, la...

We are excited to invite you to our Rare Disease Day event in Calgary on February 29, 2024! Our theme...

El 28 de febrero se celebra el Día Mundial de las Enfermedades Raras y para conmemorar este día y darle...

Mesa de Enfermedades raras para Antioquia y Red de Técnica por las Enfermedades Huérfanas de Antioquia

Momento d’incontro con le famiglie rare e il mndo delle istituzioni

Conversatorio por la conmemoración del Día Mundial de Enfermedades Raras

Potencialidades Raras Somos um grupo de 10 mulheres raras com potencialidades diversas entre nós. Nos unimos para mostrar ao mundo...

16 years ago we were starting a journey with an unforeseen destination, entering with small steps into a world full...

Danzando per arrivare….come un palloncino al cielo. Scuola di danza Giselle diretta da Gioia Concetta ore 18:30 ILLUMINAZIONE FONTANA DI...

Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...

Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...

A las 12:00h. a los pies del Ayuntamiento de Gandía (Valencia), se procederá a la lectura del manifiesto del Día...

evento a lapoblacion abierta con feria de la salud y evento musical participacion de autoridades de salud municipales y declaratoria...

Derby Theatre will be illuminated from 7pm to recognise Rare Disease Day. Students of the BSc Sound, Light, and Live...

Si affronteranno argomenti molto cari ai malati rari ovvero il diritto alla genitorialità, come diventare genitori e il sostegno psicologico...

DIA 28/2 LIVE PARA PUBLICO GERAL SOBRE OS DIREITOS DAS CRIANÇAS COM DOENÇAS RARAS DIA 4/3 LIVE PARA MÉDICOS SOBRE...

14h00| SESSÃO DE ABERTURA Sérgio Faria residente da Direção da AAADMJ Dr. Clélio Meneses Secretario Regional da Saúde e Desporte...

En una nueva jornada de concientización, la Comuna de María Teresa conmemoró el Día de las Enfermedades Pocos Frecuentes iluminando...

ACTIVIDAD DE EDUCACION Y SENSIBILIZACION SOBRE ENFERMEDADES RARAS Y ANOMALIAS CONGENITAS

Evento para discutir e expor a realidade das Doenças Raras no Brasil e, especialmente, no estado de Mato Grosso

“Mostrar tus colores” es la iniciativa de Rare Disease Day, en la cual nos sumamos una vez más. Este movimiento...

Foro Legislativo en conmemoración del Día Mundial de las Enfermedades Raras 2024 “No dejar a Nadie Atrás” y Evento de...

Plática para medicos y pacientes en conmemoración de las enfermedades raras.

Junto a las organizaciones que son parte de ALAPA organizamos un evento para difundir y concientizar sobre las Enfermedades Poco...

In Bielefeld laden seit 2009 alljährlich Selbsthilfegruppen unterstützt von Der Paritätische NRW – Selbsthilfe-Kontaktstelle Bielefeld und der Heimat Krankenkasse zu...

The exhibition aims to provide an in-depth view of the vulnerability and strengths of patients affected by various neurodegenerative and...

You’re invited to our Rare Disease Day celebration on March 5, 2023 from 2-3pm PST. This year, we are highlighting...

Sign up, get sponsored and rock bad hair for a good cause on Feb 28 and you’ll make an incredible...

In honor of Rare Disease Awareness month, The Children’s Rare Disorders Fund has launched its first annual Donate to Win...

We’re counting down 90 days to RDD! 💜💚💙 #Donations #Humanitarianevents In anticipation of February 28 2023-International Day of Rare Diseases...

💜💙💚🩷🩵 “Playground of dreams – life of dreams for every child” is an event organized by ZLRBP “My Rare World”...

A panel discussion on drug development and clinical trials in rare diseases

Undergraduate students from Duke University and North Carolina Central University will share information about rare cancers and encourage participation in...

L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organise conjointement un E-Séminaire national des maladies rares...

L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organisent conjointement un E-Séminaire national des maladies rares...

Conferencia: El genetista como parte del equipo multidisciplinario : impacto en el abordaje de las enfermedades raras en pediatría

El martes 28 de Febrero a las 16 hs se realizara un evento con el objetivo de compartir los avances...

Charla a cargo de Iliara Borges , Co fundadora de FUPIER y Claudia Rodríguez Verde, Co fundadora de Raras Cro....

Emotional Support for Coping with Uncertainty on your MMN Journey. Coping with Uncertainty Hosted by Foundation Health Navigator, Amy Stein...

Diego de 13 años de edad portador de 17 mutaciones genéticas, tendrá el honor de realizar el encendido conmemorativo en...

Encendido de la Facultad de medicina UANL 6:30 pm Frontispicio de la Facultad

Encontro do GAHP – Grupo de Apoio as Famílias com Hipertensão Pulmonar realizado pela ABRAF – Associação Brasileira de HP...

O ICVS e a Escola de Medicina – Universidade do Minho uniram-se à Ponto Braguez para realizar uma caminhada solidária/visita...

Convidamos os pacientes com doenças raras, as suas famílias e cuidadores a visitarem-nos no dia 24 de fevereiro (sexta-feira), no...

My name is Leah Haynes and I am the co-founder of a Canadian-based registered charity called Endometriosis Events. Endometriosis Events...

Instagram Live de difusión de información sobre enfermedades raras.

Entrevista televisiva para hablar del Día de las Enfermedades Raras.

Entrevista con un medio de comunicación para hablar de las enfermedades raras.

Entrevista de un reportero de la cadena de televisión Televisa para hablar de las enfermedades raras.

Entrevista al Dr. Joaquín Carrillo Farga, director del Instituto Nacional de Hematopatología en México. Es el médico que más sabe...

Entrevista al Dr. Santiago March Mifsut, coordinador del consejo de Nuevas Tecnologías, en la Fundación Mexicana para la Salud (Funsalud).

In Graz arbeiten die Kinderklinik und das Genetikinstitut eng zusammen, um Patient*innen mit seltenen Erkrankungen eine Diagnostik am neuesten Stand...

En el marco de la “I Campaña Informativa sobre Enfermedades Raras en Honduras”, la Fundación Hondureña para la Salud Hepática (FUNHEPA), Fundacion...

L’ISTITUTO COMPRENSIVO “RADICE-ALIGHIERI” CATONA RC _SCUOLA SECONDARIA DI PRIMO GRADO partecipa alla sensibilizzazione della Giornata delle Malattie Rare 2024, con:...

We are thrilled to announce the eagerly awaited second edition of the Europe Rare Disease Summit, set to take place...

The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...

Anche Bari viaggia con il colori del #RareDiseaseDay Questa mattina il taglio del nastro nel capoluogo pugliese Grazie al Sottosegretario...

Cebras México-Mujer México-XLH México, participarán en el evento protocolario organizado en conjunto con la Comisión de Salud de la Cámara...

Se lleva a cabo el evento conmemorativo de Iluminación en el Senado de la República 2023. En conjunto con la...

In diretta streaming il 1 febbraio dalle ore 10.30 l’evento Uniamo Federazione Italiana Malattie Rare onlus di presentazione della campagna...

Conferenza Stampa di lancio del tram Sirio della tranvia #uniamoleforze #rarediseaseday. Grazie ab Eugenio Giani , Simone Bezzini Serena Spinelli...

#UNIAMOLEFORZE – RARE DISEASE DAY – CITTA’ DI GENOVA Comune di Genova – Salone di Rappresentanza Palazzo Doria-Tursi – Via Garibaldi, 9...

La Conferenza Stampa ha inaugurato la campagna #UNIAMOleforze sul circuito Mupi, che avrà luogo nella città di Napoli dal 15...

La campagna di sensibilizzazione #uniamoleforze dedicata alle malattie rare, lanciata nel mese di febbraio che culmina con la giornata dedicata...

Daily posts on facebook (LBioMiT). All of February and early March. Eyes on You: LHON – avarias na fábrica de...

We will share our colours and have a afternoon coffee break sharing information about rare diseases and some of our...

On the 29th of February, to mark the Rare Disease Day, SANT committee will hold an exchange of views with...

The rené touraine foundation and its rare disease network are organizing their art contest. Each year, all the drawings of...

Expertos: pacientes, profesionales y cuidadores Mesa de enfermedades raras para Antioquia y red técnica por las enfermedades huérfanas de Antioquia,...

Quem vê cara, não vê dor! Na exposição fotográfica que está no metrô de SP neste mês você vai conhecer...

C’est une exposition pour mettre en lumière le quotidien de ceux qui vivent avec un handicap invisible. Elle se compose...

Evento di sensibilizzazione in occasione della Giornata Mondiale delle Malattie Rare presso il Comune di Aquileia, Friuli Venezia Giulia 💙💚🩷💜...

Sjældne Diagnoser afholder fællesarrangement d. 29/2-24 kl. 17-18. På programmet er: Velkomst v. Birthe Byskov Holm Premiere på Sjældne-sang Overrækkelse...

Desmoid Tumor awareness event at both the girls and boy’s basketball games.

Mesa Enfermedades Raras Para Antoquia

We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open...

En este evento podrás disfrutar de muchas actividades para toda la familia, como talleres, manualidades 🎨, pintacaras 🎭, música 🎶,...

Fighting H.A.R.D. Foundation’s Run HARD for Rare Kids was started in 2021 as a way to safely raise funds and...

Indo US Organization for Rare Diseases (IndoUSrare) is honored to announce the force behind the US Orphan Drug Act, Dr....

Iniciativa Pensemos en Cebras México, Mujer México y el Hospital General de México “Dr. Eduardo Liceaga” Invitan al: Foro Enfermedades...

Cebras México, XLH México y Otros Raquitismos y Mujer México organizan el : Foro Nacional de Enfermedades Raras: Panorama Actual...

Iniciativa Pensemos en Cebras México, XLH y otros Raquitismos México y Mujer México Organizan e Invitan a seguir la transmisión...

Le CHU de Clermont-Ferrand accueillera une vingtaine d’associations de patients atteints de maladies rares dans le hall de l’hôpital Estaing.

As Turkish Association of Public Health Specilists Rare Diseases Working Group, we organize a forum with the “Earthquake Special” agenda...

In honor of Rare Disease Day 2024, Jerry Vockley MD, PhD, will discuss a new era in therapies for rare...

To kick off Endometriosis Awareness Month, join us on March 4th from 2pm-6pm for our FriENDO Social! The event will...

The Frost Tower will participate in the #LightUpForRareCampaign in support of Rare Disease Day.

Ein Networking-Tag von und für Menschen mit seltenen Erkrankungen, und deren Angehörige unter dem Motto ‚Gemeinsam weniger selten‘. Auf dieser...

Il progetto “GeneRare: we know genetic and rare diseases” ha lo scopo di promuovere la conoscenza sulla genetica e sensibilizzare...

Genetics Matters, one of the FMS flagship public engagement events, is an annual event organised as part of the International...

“Genetics Matters” is an annual event organised by Newcastle University to mark the International Rare Disease Day. Currently in its...

Thurs 23 Feb – Genetics Unzipped Podcast: “The diagnostic odyssey: a journey into genetic testing” prior to Rare Disease Day...

The event dedicated to the Rare Disease Day will be held on Feb. 28, 2023 at 5.30 p.m. in the...

Brevi relazioni sulle malattie rare e le disabilità in generale e presentazione del progetto “Un cielo per tutti”

Evento sulle Malattie Rare, rivolto principalmente agli studenti con età compresa tra i 16 e i 19 anni. L’obiettivo è...

We have a number of buildings and landmarks lighting up in a chain of light around the country. The chain...

📣Calling all pediatric #patients, join our Empowerment Day on Saturday, February 17, 2023 at 12pm ET! This 2 hour virtual...

As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor...

Global Workshop on Access to Rare Disease Diagnosis and Treatment | Rare Disease Day 2023 Reimbursement of drugs from pharmaceutical...

We are inviting you to join our virtual campaign on the 27th & 28th of February 2023 9:00-9:30am Twitter Chat...

Hamilton Sign: Displaying blue, pink, and green on February 29.

Tiistaina 28.2.2023 klo 17–19 järjestettävä tilaisuus on suunnattu harvinaista neurologista sairautta sairastaville ja heidän läheisilleen, mutta mukaan voivat tulla kaikki...

HÃY ĐI CÙNG NHAU – và cùng chúng tớ. ️💝 Ai đó đã từng nói: “…Sẽ có một lúc nào...

A white board will be set up at the entrance of the Pasteur Institute in Tunis next to the research...

Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...

RDM’s Conference titled “How can the Educator Become an Advocate on Rare Diseases’, is going to be held under the...

As the action for the World Rare Disease Day 2024, CRYOPDP will broadcast a podcast program to educate and promote...

In this month of rare diseases, our Association is promoting a sequence of thematic lives on the pathologies that are...

To mark Rare Disease Day, a scientific conference for students willing to present medical cases will be held.

Students of the specialty “General Medicine” of the Higher School of Medicine tested the campaign with the goal of drawing...

Rare cancers are a mixed group of more than 200 kinds of neoplasia, and globally considered they are about 20%...

To help raise awareness of the day, the Trent Building on University Park Campus will join a host of other...

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL NACIONAL RAMIRO PRIALÉ PRIALÉ . 🗓Fecha: 28...

El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL_NACIONAL_RAMIRO_PRIALÉ_PRIALÉ. Invita al II ENCUENTRO REGIONAL DE ENFERMEDADES...

El Día de las Enfermedades Raras es el movimiento coordinado a nivel mundial sobre enfermedades raras. Este evento pretende socializar...

Third edition of the charitable drawing contest organised by CONGEN to raise awareness about rare diseases. The 12 selected drawings...

III ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...

Tercera edición de la carrera más solidaria con las enfermedades mitocondriales en España- del 24 al 28 de febrero y...

Ruta de 5.6 quilòmetres, de 120 minuts, geolocalitzada en temps real amb un tècnic en activitat física per la commemoració...

S’il·lumina el Monument a la Dona treballadora el Dia Mundial de les Malalties Minoritàries.

S’il·lumina per les malalties minoritàries a la posta de sol.

Illumination de la mairie en violet

L’équipe du Centre de Référence des Maladies Rares du CHU Amiens-Picardie propose l’Illumination de l’Hôtel de ville d’Amiens aux couleurs...

Rejoignez-nous le 29 février pour une soirée unique à Lille, où la solidarité s’illuminera à travers la “Global Chain of...

A l’occasion de la journée mondiale des maladies rares, le centre administratif de Mouscron (CAM) sera illuminé aux couleurs des...

Illumination of Marshal’s Office of Pomorskie Region in Gdańsk in honour of Rare Disease Day in Poland. — fot. Grzegorz...

Telstra Tower will light up in the Rare Disease Day colours for the day/night of 29th February 2024.

Illumination of the CN TOWER in the Rare Disease Day colors.

Illumination of the building

Illumination of the Palace of Culture and Science

Illumination of the Town Hall of Dzierżoniów in honour of Rare Diseases Day

Illuminazione torre dell’orologio di Palazzo Sant’Antonio

Il Comune di Segrate, in provincia di Milano, si unisce alla Global Chain of Lights, illuminando il Centro Verdi, così...

Il Comune di Aquileia, in provincia di Udine, si unisce alla Global Chain of Lights, illuminandosi con i colori della...

Iluminamos los edificio más representativos de nuestro País para generar conciencia en el Día Mundial de las Enfermedades Raras

Iluminação do Cristo Redentor pela ABRANHI Das 7 maravilhas do mundo moderno, o Cristo Redentor é a mais nova e...

Se lleva a cabo la 2da Conmemoración del Día Mundial, Nacional y Estatal de las Enfermedades Raras en el Estado...

Iniciativa Pensemos en Cebras México-XLH México y otros Raquitismos- Mujer México y comunidad de pacientes. Conmemoramos el Día Mundial y...

La Ciudad de México ilumina sus monumentos en apoyo a las personas que viven con una enfermedad rara.

La Secretaría de Obras y Servicios Urbanos se une al Día Mundial de las Enfermedades Raras iluminando de color azul,...

Mujer México-Cebras México Promovió la iluminación del color de las enfermedades raras en el Estado de Guanajuato. Con la finalidad...

Cebras México-XLH México y otros Raquitismos-Mujer México Conmemoran en el evento de Iluminación en conjunto con la Comunidad de Pacientes...

En el marco del día mundial de las enfermedades raras,Esperantra del Centro asociación de pacientes organiza este año el iluminado...

Se llevará a cabo la conmemoración en el marco del Día Mundial y Nacional de las Enfermedades Raras 2024 Iluminación...

Iluminacja Iglicy Międzynarodowych Targów Poznańskich z okazji Dnia Chorób Rzadkich

Capilala culturala eutrpeana si capitala europeana a bolilor rare 2023itatea de medicina si Farmacie, Universitatea politehnica si Spitalul de copii...

FIACCOLATA COLORATA E RUMOROSA ANIMATA DAI BAMBINI E DAI RAGAZZI DELL’ORATORIO PARROCCHIALE MOMENTO DI SENSIBILIZZAZIONE E TESTIMONIANZE VOLO DI PALLONCINI

Reunión para familias de toda Latinoamérica. El objetivo es brindar herramientas y material para optimizar la inclusión escolar y adaptaciones...

Appuntamento sotto l’albero dei Rari di Chiari e Siringomielia per un sorriso ed una foto

A Catania il 3 Marzo 2024, ci incontreremo dalle ore 10 alle ore 12,00 all’ Albero dei Rari Aismac in...

La Plateforme d’Expertise Maladies Rares Centre-Val de Loire, les professionnels du CHRU de Tours, l’AFM-Téléthon et l’Equipe Relais Handicaps Rares...

Do you or your partner have a Rare Disease? Join the Instagram Live where Jennifer and Tamaha 🇲🇽, and Alfons...

About the Conference Under the theme “Navigating the Uncharted: Advancements, Collaborations, and Hope in Rare Diseases”, the International Congress on...

One-day hybrid (in person + online) conference in the form of panel discussion “DOUBLE WAR: Ukraine`s European vector in providing...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...

With of budget of €5.3 billion, the EU4 Health program 2021-2027 represents an unparalleled EU financial support in the health...

On this day we celebrate the lives of all of those affected by the ultra-rare WWOX-related diseases and honor those...

An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent figures in...

Event Description: An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent...

Pour célébrer la Journée internationale des maladies rares, MaRaVal vous invite à la projection du film Invincible été, avec Olivier...

Hybrid Conference in Lisbon and online in honour of Rare Disease Day in Portugal.

“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w IV Dniu Chorób Rzadkich na...

El objetivo del Foro es identificar en que medida los actores que participan en el acceso a tecnologías sanitarias, pueden...

La Marcia dei Malati Rari è uno degli appuntamenti più attesi dalla comunità delle persone con malattia rara, oltre 2...

The last week of February is a rare diseases’ awareness week and the time when we can show our solidarity...

Why jazz? Jazz has a positive effect on the body and soul, including those affected by rare diseases. Moreover, jazz...

Join us at the annual North-South Rare Disease Day virtual celebration on Tuesday 28th February from 1.30 pm to 3...

Stand para visibilización, folletería, micrófono abierto, información sobre leyes de las EPOF, experiencias con las EPOF.

La Facultad de Medicina de la UNAM a través de La Unidad de Enfermedades Raras de la División de Investigación,...

Con el objetivo de visibilizar la necesidad del fortalecimiento de las competencias profesionales acerca de la sospecha y manejo de...

Únete a nosotros en una jornada extraordinaria donde la investigación y los tratamientos para las Enfermedades Hereditarias de la Retina...

La mairie a été colorée en violet durant une semaine

Dans le cadre de la Journée Internationale des Maladies Rares, l’équipe du Centre de Référence des Maladies Rares du CHU...

Chaque année, le dernier jour de février a lieu la Journée Internationale des Maladies Rares (JIMR). Cette journée, célébrée dans...

À l’occasion de la 16ème édition de la Journée Internationale des Maladies Rares (JIMR 2023), les associations de personnes concernées...

La plateforme d’expertise maladies rares du Grand Paris Est ESMARA se mobilise pour la Journée Internationale Maladies Rares 2024 à...

Chaque année, la Journée Internationale des Maladies Rares (JIMR) se tient le dernier jour de février. À cette occasion, des...

Le 16 février a eu lieu la Journée des Maladies Rares organisée par l’institut MarMaRa, l’Alliance Maladies Rares ainsi que...

Journée Maladies Rares – 29 février 2024 Grands Salons de l’Hôtel de Ville (entrée place Stanislas) 08h30 – 17h00 Gratuit...

RANDONNEE PEDESTRE ORGANISEE PAR LE GROUPE DE PRESSE AFRIKSANTE ET L’ASSOCIATION HUMANITAIRE DE LUTTE CONTRE LES MALADIES EN PARTENARIAT AVEC...

La Plateforme d’Expertise Maladies Rares vous propose une journée thématique sur l’implication et l’engagement des patients dans le soin, la...

Journée dédiée aux centres maladies rares du CHU de Clermont-Ferrand, et cette année, centrée sur les résultats de la labellisation...

Horário: 14:00 – 18:00 Organização: Mirror Group Português do Programa Europeu Conjunto para as Doenças Raras (NMG – EJP RD)...

Join us for KGI’s 16th Annual Rare Disease Day Virtual Event, our theme is Mental Health & Rare Disease! This...

Creata per affrontare le sfide che le persone affette da malattie rare devono affrontare quotidianamente intende ricordare a tutti che...

Le malattie rare sono una piaga che colpisce milioni di bambini in tutto il mondo. Spesso, però, il numero di...

Video to promote Keratoconus Knowledge

Nous organisons une exposition de créations produites par des patients ayant une maladie rare. Ce rendez-vous aura lieu le 28...

Un evento teatrale dedicato ai bambini con malattia rara, in particolare a quelli seguiti dal Centro Malattie Rare Pediatriche dell’Ospedale...

AnDDI-Rares a visité 12 hôpitaux de France avec son projet d’ateliers artistiques dédiés aux enfants Pendant trois mois, des artistes...

L’evento prevede una carovana formata dalle auto dei volontari delle associazioni delle malattie rare di Bergamo e Provincia per sensibilizzare...

evento dirigido a medicos en formación de la escuela de medicina de la Universidad Autonoma de Guadalajara

WEBINAR | Mesa debate La investigación en EPOF: Un camino común para 8.000 patologías Moderadora • Dra. Jorgelina Stegmann |...

Intervención comunitaria que tendrá lugar en Benavides de Órbigo, el día 21 de febrero de 2023, con motivo de la...

Iniciativa Pensemos en Cebras México y Fundación Mujer México como cada año participan activamente en la conmemoración del Día Mundial...

LABORATORIO_RAREDISEASEDAY 2023 OCCORRENTE:  T-SHIRT BIANCA  COLORI ACRILICI (AZZURRO, VIOLA, VERDE E FUCSIA)  PENNELLI  UNIPOSCA (per scrivere...

Dr. Bruno Guedes Baldi, pulmonologist from the Brazilian LAM Clinic, talks to Maria Clara Castellões, vice-president of Alambra, the Brazilian...

Edmonton’s high level bridge will be lit up for rare disease day

MORE COMMUNITY IS A COMMUNITY FOR MOTHERS OF CHILDREN WITH RARE DISEASES AND CHILDREN WITH SPECIAL NEEDS CENTERED IN MALANG...

In order to take part in Rare Disease Day 2024, MORE Community will hold an event entitled Langka(h) Kecil 2024:...

Lanzamiento del libro “Un milagro llamad Emmanuel” Autora: Leonisa Castillo Centeno. Líder de 11Q Latinoamerica

On World Rare Disease Day, the Department of Pathology and Laboratory Medicine is launching a Newborn Screening Program for Selected...

EVENTO RIVOLTO AI DOCENTI ED AL PERSONALE SANITARIO dell’area Veneto Orientale per sensibilizzare sul tema delle Malattie Rare e dell’importanza...

Un concerto inaugurale “Le scarpe di Alice” della mostra “La donna di Sera”: filo conduttore il coraggio e la fragilità...

BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...

BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...

28 lutego 2024 roku, z okazji Międzynarodowego Dnia Chorób Rzadkich, Fundacja ICHB PAN we współpracy z Instytutem Chemii Bioorganicznej PAN...

Less Rare: demystifying rare diseases is the event organized by CNC-UC to mark World Rare Disease Day, on February 29,...

With the symbolic painting of hands and posters the teachers and the students sent a message for unreserved support and...

Dans le cadre de la journée des maladies rares et/ou graves, l’asbl Chiara, Vie, Don d’organes et Solidarité organise en...

A year ago, Baby Lukie was diagnosed with a very rare disease called ZTTK, discovered only in 2016. There are...

As China has a large population, the patients with rare diseases in China are not rare. Chinese government and passionate...

Banja Luka illuminated the cultural building “Banski dvor” in the city center for the third year in a row.

Lighting the building and a conference about Rare diseases

Light up the Pisa Tower

Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world

Rare Disease Day Municipal Proclamation 2023 Light Up Wolfeboro Town Hall for Rare Disease Day

Awareness event with illumination of a research building, information stands, discussion rounds and guided laboratory tours.

Winnipeg will be lighting up their Winnipeg Sign and the Esplanade Riel Bridge on Rare Disease Day (At the Forks...

Informationsveranstaltung zu Seltenen Erkrankungen und Beleuchtung des Gebäudes

Everyone can participate! Show solidarity with the rare disease community and light up for Rare Disease Day at 7pm on...

The city hall tower will be lit up for Rare Disease day for the first time ever.

The top of the iconic Terminal Tower in downtown Cleveland will be lit in the colors of Rare Disease Day.

The County Administration has agreed to Light up the building on/for Rare Disease Day

Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...

Illumination event: Buildings on campus of the University Hospital Essen are illuminated with different colors to symbolize the diversity of...

The Frost Tower is participating in the Light Up For Rare Campaign and its iconic exterior lighting will illuminate in...

Danzavida De San Antonio Dance Company is proudly participating in the Light Up For Rare Campaign. The lighting in the...

The Alamo Quarry is participating in the Light Up For Rare Campaign and will have the famous smoke stacks illuminated...

The Millennium bridge will be lit up to celebrate International Rare Disease Day in collaboration with Gateshead City Council and...

St Mary’s Lighthouse will be lit up to celebrate International Rare Disease Day in collaboration with Gateshead City Council and...

The NGO ‘Rare Diseases of Ukraine” organises the illumination to highlight the Rare Disease Day 2024 in Ukraine and to...

Light up for Rare Disease Day 2024 Both Enniskillen Castle and Strule Arts Centre, will be lighting up pink! In...

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...

The Downtown Detroit Partnership is proud to show our stripes for those living with rare diseases by lighting up Campus...

Light Up for Rare Philippines is an open invitation to all offices, institutions, corporations and government agencies. The Light Up...

Light Up for Rare Philippines is an open invitation to all offices, institutions, corporations and government agencies. The Light Up...

The National Alliance for Rare Diseases Support – Malta will be joining the rest of the world in the Global...

The National Alliance for Rare Diseases Support – Malta in collaboration with the Ministry for Gozo will be lighting up...

“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...

Illumination of 1 Nicholas Street Ipswich Central in honour of Rare Disease Day in Australia.

Illumination of 101 Collins Street in honour of Rare Disease Day in Australia.

“95” Rare Alliance Greece illuminates a building at Eleftherios Venizelos Airport, in Athens, Greece.

Illumination of the AAMI Park in honor of Rare Disease Day in Australia.

Illumination of the AAMI Park in honour of Rare Disease Day in Australia.

Illumination of AC Praetorium Tongeren in honour of Rare Disease Day in Belgium.

Illumination of the Adelaide Oval in honor of Rare Disease Day in Australia.

Illumination of the Adelaide Oval in honour of Rare Disease Day in Australia.

Illumination of the Albany Town Square in honor of Rare Disease Day in Australia.

Illumination of the Alison Harman Garden in honor of Rare Disease Day in Australia.

Illumination of Amherst Town Hall in honour of Rare Disease Day in Canada.

Illumination of Amiens’ town hall in honour of Rare Disease Day in France

Illumination of Angra do Heroísmo Town Hall in honour of Rare Disease Day in Portugal.

Illumination of Antiguo Palacio de Justicia y Antiguo Ayuntamiento de Estella-Lizarra in honour of Rare Disease Day in Spain

Illumination of Anzac Parade Bridge in honour of Rare Disease Day in New Zealand.

Illumination of Arcadas da Serra do Pilar in honour of Rare Disease Day in Portugal.

Illumination of Argenx in honour of Rare Disease Day in Belgium.

Illumination of the Clock Tower in honour of Rare Disease Day in New Zealand.

Illumination of Ayuntamiento Cartes in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Avilés in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Barcelona in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Burlada in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Gandía in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Gijón in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Soria in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento de Valdepeñas / fuente de la Plaza de España de Valdepeñas in honour of Rare Disease Day in...

Illumination of Ayuntamiento de Valencia (+ lectura institucional y pancarta) in honour of Rare Disease Day in Spain

Illumination of Ayuntamiento Santander in honour of Rare Disease Day in Spain

Illumination of the Banja Luka City Administrative Office in honour of Rare Disease Day in Bosnia and Herzegovina.

Illumination of Bascule Bridge in honour of Rare Disease Day in New Zealand.

Illumination of the Bell Tower in honour of Rare Disease Day in Australia.

Illumination of the Big Banana in honour of Rare Disease Day in Australia.

Illumination of the Bijeljina Administrative Offices in honour of Rare Disease Day in Bosnia and Herzegovina.

Illumination of the Birrarung Marr Pedestrian Bridge in honor of Rare Disease Day in Australia.

Illumination of the Bolte Bridge and Citylink Sound Tube in honour of Rare Disease Day in Australia.

Illumination of Bom Jesus do Monte in honour of Rare Disease Day in Portugal.

Illumination of the Bowker Fountain in honour of Rare Disease Day in New Zealand.

Illumination of the Box Hill Town Hall in honour of Rare Disease Day in Australia.

Illumination of Braga Cathedral in honour of Rare Disease Day in Portugal.

Illumination of Brampton Clock Tower in honour of Rare Disease Day in Canada.

Illumination of the Breakfast Creek Bridge in honour of Rare Disease Day in Australia.

Illumination of the Brisbane City Hall in honour of Rare Disease Day in Australia.

Illumination of the British Columbia Legislature in honour of Rare Disease Day in Canada.

Illumination of British Columbia Place in honour of Rare Disease Day in Canada.

Illumination of the Broadmeadows Town Hall in honor of Rare Disease Day in Australia.

Illumination of the Broeltorens in honour of Rare Disease Day in Belgium.

Illumination of the Busselton Civic Centre in honour of Rare Disease Day in Australia.

Illumination of Cabildo de Tenerife in honour of Rare Disease Day in Spain

Illumination of Calgary Tower in honour of Rare Disease Day in Canada.

Illumination of the Campbelltown Migrant Monument in honour of Rare Disease Day in Australia.

Illumination of the Captain Scott Plaza in honour of Rare Disease Day in New Zealand.

Illumination of Cascais Town Hall in honour of Rare Disease Day in Portugal.

Illumination of Castelo Branco City Hall in honour of Rare Disease Day in Portugal.

Illumination of the Catenary Lights, Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.

Illumination of Cauce del Río in honour of Rare Disease Day in Spain

Illumination of CC de Velinx Tongeren in honour of Rare Disease Day in Belgium.

Illumination of the Central Park Boardwalk in honor of Rare Disease Day in Australia.

Illumination of the Central Park Boardwalk in honour of Rare Disease Day in Australia.

Illumination of Centre Administratif Mouscronnois in honour of Rare Disease Day in Belgium.

Illumination of Christchurch Airport and Airport Control Tower in honour of Rare Disease Day in New Zealand.

Illumination of the Botanical Gardens in honour of Rare Disease Day in New Zealand.

Illumination of the City Beach Function Centre in honor of Rare Disease Day in Australia.

Illumination of the City Hall Annex in honor of Rare Disease Day in Australia.

Illumination of the City of Gosnells Civic Centre in honor of Rare Disease Day in Australia.

Illumination of Coruche City Hall in honour of Rare Disease Day in Portugal.

Illumination of the Council House in honor of Rare Disease Day in Australia.

Illumination of Covilhã City Hall in honour of Rare Disease Day in Portugal.

Illumination of Cristo del Otero in honour of Rare Disease Day in Spain

Illumination of Cromwell Fruit Sculpture in honour of Rare Disease Day in New Zealand.

Illumination of the Crown Casino in honor of Rare Disease Day in Australia.

Illumination of the Crown Melbourne in honour of Rare Disease Day in Australia.

Illumination of the Crown Resorts in honour of Rare Disease Day in Australia.

Illumination of the Derventa Administrative Offices in honour of Rare Disease Day in Bosnia and Herzegovina.

Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain

Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain

Illumination of Dunedin Railway Station in honour of Rare Disease Day in New Zealand.

Illumination of the Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.

Illumination of the Eastern Goldfields Community Centre in honour of Rare Disease Day in Australia.

Illumination of  Eden Park in honour of Rare Disease Day in New Zealand.

Illumination of Edificio Capitania del Puerto de Badalona in honour of Rare Disease Day in Spain

Illumination of Edifício do Arquivo Distrital de Viseu in honour of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Angra do Heroísmo, Açores in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Coimbra in honor of Rare Disease Day in Portugal.

Illumination of the difício dos Paços do Concelho, Coimbra in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Évora in honor of Rare Disease Day in Portugal.

Illumination of the Edifício dos Paços do Concelho, Guarda in honor of Rare Disease Day in Portugal.

Illumination of Edificio Moneo in honour of Rare Disease Day in Spain

Illumination of Edmonton High Level Bridge in honour of Rare Disease Day in Canada.

Illumination of Edmonton Tower in honour of Rare Disease Day in Canada.

Illumination of El castell de Benidorm in honour of Rare Disease Day in Spain

Illumination of El foso de San Felipe in honour of Rare Disease Day in Spain

Illumination of El Tossal de Benidorm in honour of Rare Disease Day in Spain

Illumination of Emigration Museum in honour of Rare Disease Day in Poland fot. Anna Żbikowska

Illumination of Escola Básica Frei Manuel Cardoso in honour of Rare Disease Day in Portugal.

Illumination of Estadio San Mamés in honour of Rare Disease Day in Spain

Illumination of the Evan Walker Bridge in honor of Rare Disease Day in Australia.

Illumination of the Fan Fare Sculpture in honour of Rare Disease Day in New Zealand.

Illumination of Faro City Hall in honour of Rare Disease Day in Portugal.

Illumination of the Federation Square in honor of Rare Disease Day in Australia.

Illumination of the Flinders Street Station in honor of Rare Disease Day in Australia.

Illumination of Flinders Street Station in honour of Rare Disease Day in Australia.

Illumination of Foxton Clock Tower in honour of Rare Disease Day in New Zealand.

Illumination of Fred A. Lundy Bridge in honour of Rare Disease Day in Canada.

Illumination of the Fremantle Prison Gatehouse in honor of Rare Disease Day in Australia.

Illumination of the Fremantle Prison Gatehouse in honour of Rare Disease Day in Australia.

Illumination of Fronteira City Hall in honour of Rare Disease Day in Portugal.

Illumination of Fuente de Cibeles in honour of Rare Disease Day in Spain

Illumination of Fuente de Murrieta de Logroño in honour of Rare Disease Day in Spain

Illumination of Fuente de Santo Domingo in honour of Rare Disease Day in Spain

Illumination of Funchal City Hall in honour of Rare Disease Day in Portugal.

Illumination of GBS Lochristi in honour of Rare Disease Day in Belgium.

Illumination of Gemeente Gooik in honour of Rare Disease Day in Belgium.

Illumination of Gemeentehuis van Hoeselt in honour of Rare Disease Day in Belgium.

Illumination of Gemeentehuis van Lochristi in honour of Rare Disease Day in Belgium.

Illumination of Gemeentehuis Wellen in honour of Rare Disease Day in Belgium.

Illumination of the George Roberts Bridge in honour of Rare Disease Day in Australia.

Illumination of the George Roberts Bridge in honor of Rare Disease Day in Australia.

Illumination of the Goulburn Visitor Information Centre in honour of Rare Disease Day in Australia.

Illumination of the Guppy Park in honor of Rare Disease Day in Australia.

Illumination of the General Workers’ Union building in honour of Rare Disease Day 2024 in Malta.

Illumination of Hastings Clock Tower in honour of Rare Disease Day in New Zealand.

Illumination of Havenhuis Port of Antwerp-Bruges in honour of Rare Disease Day in Belgium.

Illumination of Heikantweg in honour of Rare Disease Day in Belgium.

Illumination of the Hervey Bay Esplanade in honour of Rare Disease Day in Australia.

Illumination of Hikitia Crane at Wellington Waterfront in honour of Rare Disease Day in New Zealand.

Illumination of His Majesty’s Theatre in honour of Rare Disease Day in Australia.

Illumination of Hof van Villers in honour of Rare Disease Day in Belgium.

Illumination of Horta Town Hall in honour of Rare Disease Day in Portugal.

Illumination of Hospital Marqués de Valdecilla in honour of Rare Disease Day in Spain

Illumination of Hospital Universitario Cruces in honour of Rare Disease Day in Spain

Illumination of Hotel Communal d’Etterbeek in honour of Rare Disease Day in Belgium.

Illumination of the Igreja de Santiago, Óbidos in honor of Rare Disease Day in Portugal.

Illumination of Igreja Matriz in honour of Rare Disease Day in Portugal.

Illumination of Infantário Nossa Senhora da Vila Velha in honour of Rare Disease Day in Portugal.

Illumination of Ipsen-BeLux Office in honour of Rare Disease Day in Belgium.

Illumination of the Ipswich City Council Building in honor of Rare Disease Day in Australia.

Illumination of the Ipswich Civic Centre in honour of Rare Disease Day in Australia.

Illumination of the Isle of Capri Bridge in honour of Rare Disease Day in Australia.

Illumination of the Jacaranda Tower in honor of Rare Disease Day in Australia.

Illumination of Jardim das Portas do Sol in honour of Rare Disease Day in Portugal.

Illumination of the Joondalup Drive Bridge in honor of Rare Disease Day in Australia.

Illumination of the Joondalup Drive Bridge in honour of Rare Disease Day in Australia.

Illumination of Kelburn Fountain in honour of Rare Disease Day in New Zealand.

Illumination of Kerk Onze-Lieve-Vrouw Oorzaak onzer Blijdschap in honour of Rare Disease Day in Belgium.

Illumination of Kerk Sint-Genesius-Rode in honour of Rare Disease Day in Belgium.

Illumination of the King José I Statue in honour of Rare Disease Day in Portugal.

Illumination of the Broadmeadows Town Hall in honor of Rare Disease Day in Australia.

Illumination of the Kingston Clock Tower in honour of Rare Disease Day in Australia.

Illumination of the Kingsway Flyover Billboard Sign in honour of Rare Disease Day in Australia.

Illumination of the Koombana Bay Footbridge in honor of Rare Disease Day in Australia.

Illumination of the Koombana Bay Foreshore in honor of Rare Disease Day in Australia.

Illumination of the Kununurra Courthouse in honour of Rare Disease Day in Australia.

Illumination of the Kurilpa Bridge in honor of Rare Disease Day in Australia.

Illumination of the Lakes District Museum in honour of Rare Disease Day in New Zealand.

Illumination of Lar da Santa Casa da Misericórdia in honour of Rare Disease Day in Portugal.

Illumination of the Launceston Town Hall in honour of Rare Disease Day in Australia.

Illumination of Batiment du Centre Culturel in honour of Rare Disease Day in Belgium.

Illumination of the Little Fletcher Bridge in honor of Rare Disease Day in Australia.

Illumination of the Little Fletcher Bridge in honour of Rare Disease Day in Australia.

Illumination of Lousã Town Hall in honour of Rare Disease Day in Portugal.

Illumination of the M8 St Peters Interchange in honor of Rare Disease Day in Australia.

Illumination of the Mandurah Bridge in honor of Rare Disease Day in Australia.

Illumination of the Mandurah Bridge in honour of Rare Disease Day in Australia.

Illumination of the Manly Town Hall in honour of Rare Disease Day in Australia.

Illumination of the Marlston Waterfront in honor of Rare Disease Day in Australia.

Illumination of Martelarenplein in honour of Rare Disease Day in Belgium.

Illumination of the Maryborough City Hall in honour of Rare Disease Day in Australia.

Illumination of the Matagarup Bridge in honor of Rare Disease Day in Australia.

Illumination of the Matagarup Bridge in honour of Rare Disease Day in Australia.

Pink, Blau, Grün und Lila sind die Farben des Rare Disease Day. Wir beteiligen uns am 28.02.2023 an der Aktion...

Illumination of the Melbourne Cricket Ground in honour of Rare Disease Day in Australia.

Illumination of the Melbourne Town Hall in honor of Rare Disease Day in Australia.

Illumination of the Melbourne Town Hall in honour of Rare Disease Day in Australia.

Illumination of the School of Medicine at Minho University in honour of Rare Disease Day in Portugal.

Illumination of Mississauga City Hall in honour of Rare Disease Day in Canada.

Illumination of the Monash Park Tree in honor of Rare Disease Day in Australia.

Illumination of the Mooroopna Water Tower in honor of Rare Disease Day in Australia.

Illumination of the Mount Gambier Visitor Centre in honour of Rare Disease Day in Australia.

Illumination of the Mount Street Bridge in honour of Rare Disease Day in Australia.

Illumination of the Mounts Street Bridge in honor of Rare Disease Day in Australia.

Illumination of the Multi-Arts Pavilion in honor of Rare Disease Day in Australia.

Illumination of the Muralhas do Jardim das Portas do Sol, Santarém in honor of Rare Disease Day in Portugal.

Illumination of Museo de Arte Contemporáneo de Palencia (Fundación Díaz Caneja) in honour of Rare Disease Day in Spain

Illumination of Museu do Traje in honour of Rare Disease Day in Portugal.