On Rare Disease Day 2023, Rare Diseases International (RDI) invites you to “#SeeRare”, a virtual event showcasing the breadth of the growing rare disease civil society movement and the global community of Persons Living with a Rare
Around the world, PLWRD and their families experience an invisibility that exacerbates health and social inequities, stigma, and discrimination. We are often invisible to health care systems, absent from policies and planning, and
excluded from social life.
To mark Rare Disease Day 2023 and launch a year of advocacy, RDI challenges the public and policymakers to #SeeRare – to recognize the over 300 million Persons Living with a Rare Disease and take action to improve the lives of PLWRD in every country.
- OUR AIM
#SeeRare is hosted in partnership with the Rare Disease Day campaign and leverages the campaign’s global reach and online presence to maximize the visibility of rare disease groups.
- THE EVENT
On 28 February 2023, participants will take a tour of the world through short messages from rare disease groups on six continents. Together, the global community will mark Rare Disease Day and bring attention to challenges confronted
by the rare disease community in their country or the condition they represent.
The event will be aired on Rare Disease Day’s Facebook Page and RDI’s webinar platform. Participants can interact with each other, share messages, send pictures, answer polls, and follow the event on social media using the hashtags
#SeeRare and #RareDiseaseDay.
You can register here: https://www.rarediseasesinternational.org/rare-disease-day/
Find the event program here.