Rare Disease Day in Uruguay
Since 2011, participation in Rare Disease Day in Uruguay has included organising fundraising events and launching a publicity campaign, as well as the promotion of new rare disease policy. In Uruguay the National Awareness Week for Rare Diseases is held over the last week of February in coordination with Rare Disease Day.
Every year, people living with rare diseases in Uruguay come together with their friends and family to celebrate Rare Disease Day. There have also been film showings and Webinars with scientists open to the general public to ask specific questions on rare genomic science.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]