Rare Disease Day in Uruguay
Since 2011, participation in Rare Disease Day in Uruguay has included organising fundraising events and launching a publicity campaign. In Uruguay the National Awareness Week for Rare Diseases is held over the last week of February in coordination with Rare Disease Day. 2014 focused on promoting the adoption of the new rare diseases law which is currently being debated in parliament.
You can also get involved! Write to us at [email protected].
Associations participating in Rare Disease Day 2014 from Uruguay, included the Asociación Todos Unidos Enfermedades Raras Uruguay, [email protected]. Please do get in contact if you have any questions.