United States

National Alliance
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
2018 events in United States
United States

Rare Disease Day in United States

The USA joined Rare Disease Day in 2009, making the campaign a truly international affair. Diverse events and campaigns have been organised ever since then, and in 2013 President Barack Obama sent a letter proclaiming his support of the day.

2018 again saw a huge variety of events across America from an inclusive online music campaign to make a compilation of songs to unite a global community, to races both in real time and virtual. High-School students with rare diseases organised events at their schools and spoke in assemblies to raise awareness and the ‘Beyond the Diagnosis’ art exhibition also placed patients at the heart of the day.

Social media again played a big role with the 'Rare but Real' campaign and with many people enthusiastically painting their faces for the #ShowYourRare campaign.

For events in the US, please submit your information to the US specific website for Rare Disease Day: http://rarediseaseday.us/events/tell-us-what-youre-doing/
 

 

Share this