United States

National Alliance
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
2017 events in United States
United States

Rare Disease Day in United States

The USA joined Rare Disease Day in 2009, making the campaign a truly international affair. Diverse events and campaigns have been organised ever since then, and in 2013 President Barack Obama sent a letter proclaiming his support of the day. 

In 2017, events were as varied as they were widespread, with more than 40 different events. There was a student research event in Delaware, a toy and book collection for children with rare diseases, and educational events across the country. The Rare Acts of Kindness campaign encouraged people to perform small acts of kindness to celebrate the day.

For events in the US, please submit your information to the US specific website for Rare Disease Day: http://rarediseaseday.us/events/tell-us-what-youre-doing/
 

 

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