Rare Disease Day in Slovakia
Slovakian patient organisations have collaborated on Rare Disease Day since 2013. They have used the occasion to host conferences for all stakeholders, publish scientific papers, and hold events in the Slovak parliament. In 2016, an annual special issue of the European Pharmaceutical Journal was released about the Slovak experience and approach towards rare diseases.
For Rare Disease Day 2018 there was also a press conference with the Ministry of Health in Bratislava which discussed sharing information and connecting with Europe.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].