Sweden

National Alliance
Rare Diseases Sweden (RIKSFÖRBUNDET SÄLLSYNTA DIAGNOSER)
Rare Diseases Sweden (RIKSFÖRBUNDET SÄLLSYNTA DIAGNOSER)
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Sweden

Rare Disease Day in Sweden

Sweden has taken part in Rare Disease Day celebrations since its beginning in 2008, when the Swedish Crown Princess Victoria publicly showed her support for the day. Patient organisations have used the occasion to create films on rare diseases, for example on the state of healthcare improvements, and to host educational seminars across the country. In 2016, Rare Diseases Sweden hosted a film festival, in order to show award winning and critically acclaimed films and talk about topics related to rare diseases.

For Rare Disease Day 2018, Sweden once again held a variety of events. One campaign called Rare Profession shared stories from people who work in the field of rare diseases, for example researchers and care professionals. In addition, there was an event to increase understanding of rare diseases and on how to improve living conditions for people living with a rare disease.

You can also get involved! Write to us at [email protected].

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