Russian Federation

National Alliances
National Association of  Patients with Rare Diseases '"GENETICA"
National Association of Patients with Rare Diseases '"GENETICA"
Russian Association of Rare Diseases
Russian Association of Rare Diseases
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Russian Federation

Rare Disease Day in Russian Federation

The Russian Federation has participated in Rare Disease Day since 2009, involving the general public and stakeholders alike. Events have varied from photo and children’s art exhibitions, to roundtables and advocacy events. Charity auctions as well as press conferences to improve legislation and the health care system have also taken place.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

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