Russian Federation

National Alliances
National Association of  Patients with Rare Diseases '"GENETICA"
National Association of Patients with Rare Diseases '"GENETICA"
Russian Association of Rare Diseases
Russian Association of Rare Diseases
2017 events in Russian Federation
Russian Federation

Rare Disease Day in Russian Federation

The Russian Federation has participated in Rare Disease Day since 2009, involving the general public and stakeholders alike. Events have varied from photo and children’s art exhibitions, to roundtables and a drive for signatures advocating for rare diseases. In 2017 the seventh annual national awards in rare diseases was held. Those who had contributed greatly to the rare disease cause were honoured with a ‘Blue Bird Award’.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

If you would like to get involved, please write to us at [email protected].

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