Rare Disease Day in Paraguay
Paraguay held its first ever Rare Disease Day celebrations in 2014, with a number of events across the country throughout February. Highlights included a scientific conference aimed at the nursing community, an awareness campaign on rare diseases, and a day of psychological support called, "Love of Life," for families of people living with a rare disease. It was an emotional opportunity for patients to share stories and experiences and to know they are never alone.
People came together to celebrate Rare Disease Day in 2018 through painting and balloons. There were also different talks held at hospitals in Paraguay to raise awareness.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]