Portugal

National Alliance
Aliança Portuguesa de Associações das Doenças Raras
Aliança Portuguesa de Associações das Doenças Raras
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Portugal

Rare Disease Day in Portugal

Portuguese patient organisations have celebrated Rare Disease Day since 2008, organising a range of events over the years. Photo exhibitions, informative conferences, and rare disease award ceremonies have all helped to raise awareness. In 2017 there was a conference in Porto with clinical experts, researchers and health technicians discussing how best to improve rare disease research.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 

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