Portugal

National Alliance
Aliança Portuguesa de Associações das Doenças Raras
Aliança Portuguesa de Associações das Doenças Raras
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Portugal

Rare Disease Day in Portugal

Portuguese patient organisations have celebrated Rare Disease Day since 2008, organising a range of events over the years. Photo exhibitions, informative conferences, and rare disease award ceremonies have all helped to raise awareness.

Art played a big role in Rare Disease Day 2018. People living with a rare disease were encouraged to submit a photo and story to share on social media. The Expression of Hope exhibition displayed works of art created by people living with a rare disease to express their hope and also demonstrate the living reality and experience of living with a rare disease. There were also conferences on the 2018 theme research and the opportunity for people living with a rare disease to visit laboratories to bring them closer to the research process.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 

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