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Rare Disorders New Zealand

New Zealand


Rare Disease Day in New Zealand


New Zealand’s participation in Rare Disease Day goes back to 2010. Since then, patient associations from New Zealand have used the occasion to educate the public and raise money through fundraising events. Previous highlights of Rare Disease Day in New Zealand include a photo competition, a run around the Bays of Auckland and a cocktail evening in Wellington. Symposiums focusing on enabling clinicians, researchers and patients to work together to optimise progress have also taken place. 

In 2020 Rare Disorder NZ held an event at Parliament to call for Fair for Rare.The event called for acknowledgement of the common challenges faced by people living with a rare disease, along with a commitment to address these challenges through the development of a New Zealand National Rare Disorder Framework.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

Rare Disorders New Zealand logo
Rare Disorders New Zealand

FRIENDS IN New Zealand

Events in New Zealand


New Zealand's Rare Disease Day Illuminations image
New Zealand's Rare Disease Day Illuminations

The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day:- Oamaru Opera House,...

28 Feb 2021

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Summer Picnic image
Summer Picnic

We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support of Rare Diseases Day...

28 Feb 2021 - Orewa, auckland

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Rare Beer competition image
Rare Beer competition

Fortune Favours presents The Rare Beer Challenge; a fundraiser for Rare Disorders NZ. We've asked Wellington breweries to...

26 Feb 2021 - Wellington

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