Rare Disease Day in Netherlands
The Netherlands has been active with Rare Disease Day since its beginning in 2008. The National Rare Disease Day (‘Nationale Zeldzameziektendag’) is organized by VSOP, the Dutch National Patient Alliance for Rare and Genetic Disease. In 2017 a national conference on rare diseases was held in Utrecht with a particular focus on research, the theme of this and last year’s Rare Disease Day.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].