Rare Disease Day in Latvia
Latvia has been involved in Rare Disease Day since 2010. Most notably, patient groups have held discussions in the EU Conference Hall in Riga to discuss Latvian policy for rare diseases. Other events have included photo exhibitions to raise awareness about the struggles rare disease patients face. In 2016, Latvian Alliance for Rare Diseases wrote an open letter to mass media and general public of Latvia about the crucial and problematic situation in the field of the rare diseases in Latvia.
In 2018, Rare Disease Day in Latvia focused on early recognition of symptoms for rare diseases, especially in rural areas. Family doctors, geneticists, cardiologists and non-government organisations were all invited to participate in this meeting.
In 2019, the Alliance organized a public event to improve awareness of social services and the role of emotional health within rare disease patients.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].