Rare Disease Day in Lebanon
Lebanon first participated in Rare Disease Day in 2013. Since then, patient organisations have used the day to mobilise the media to raise awareness about rare diseases in the country. For the last 4 years a ‘Family Fun Day’ has been held to celebrate the day and raise awareness for those with rare diseases. In 2019, an event for children affected by neuromuscular diseases took place in Beirut, promoting the #ShowYourRare face painting campaign.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].