NATIONAL ALLIANCE

RDD Japan logo
RDD Japan

Japan


Rare Disease Day in Japan


Japanese associations joined Rare Disease Day in 2010 with events since including seminars, conferences and fun events.

In 2020, Rare Disease Day was celebrated with events throughout Japan including lectures, mini concerts, exhibition booths and much more! 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 



NATIONAL ALLIANCE

RDD Japan logo
RDD Japan

FRIENDS IN Japan

Events in Japan


RDD Ishigakijima (Japan) image
RDD Ishigakijima (Japan)

1) Activities to learn about diseasesPicture book reading Thinking about illness and life2) Pray for the convergence of coronaMaking...

31 Mar 2021

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RDD Oakayama image
RDD Oakayama

Program (tentative) -Support System for Intractable Diseases in the Corona Era -Spiritual care -Live music performance by...

21 Mar 2021 - Okayama prefecture southern part health center

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RDD SCD MSA (Japan) image
RDD SCD MSA (Japan)

Multiple System Atrophy (MSA) Online International Exchange Meeting1〉Opening remarks (10 minutes) Panel discussion (60 minutes)[Theme]...

15 Mar 2021

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RDD NABYO Cafe (Japan) image
RDD NABYO Cafe (Japan)

In recent years, intractable disease cafes have been gradually spreading from the Kyushu area to the Kanto and other regions...

13 Mar 2021

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RDD HAMAMATSUCHO Building (Tokyo, Japan) image
RDD HAMAMATSUCHO Building (Tokyo, Japan)

RDD2021 introductionPatients testimonial Mr. and Mrs. WakuiParticipants: Only those who work at Hamamatsucho Building

10 Mar 2021

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RDD Yamaguchi (Japan) image
RDD Yamaguchi (Japan)

In RDD Yamaguchi, we will express the theme of RDD Japan 2021, "Your want to know rare, I want to know more" through music.The...

07 Mar 2021

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RDD CHIBA (Japan) image
RDD CHIBA (Japan)

Held online-livePatients’ testimonial Discuission; What we can do for welfare and care, etc.

07 Mar 2021

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RDD GBS CIDP (Japan) image
RDD GBS CIDP (Japan)

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February...

28 Feb 2021

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RDD Okinawa (Japan) image
RDD Okinawa (Japan)

11:00 - 12:30 Talk show-1  Let's become a disaster preparedness person" - Mr. Toru Terukina12:30 - 13:00 Break (RDD Japan...

28 Feb 2021

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RDD Satsuma- rare disease (Japan) image
RDD Satsuma- rare disease (Japan)

Online streaming of mini-concerts and greeting messages from concerned parties!

28 Feb 2021 - 31 Mar 2021

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RDD Kagoshima (Japan) image
RDD Kagoshima (Japan)

Poster ExhibitionPoster exhibition by member organizations of the Kagoshima NANBYO Support NetworkIntroduction of the 10th...

28 Feb 2021

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RDD Hiroshima (Japan) image
RDD Hiroshima (Japan)

Message from a person with a rare and incurable diseaseMrs. Aya Nakajima, mother of a son with congenital central alveolar...

28 Feb 2021 - Hiroshima prefectural health and welfare center

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RDD Tottori (Japan) image
RDD Tottori (Japan)

1. Explanation of the purpose of the project Guest; Yukiko Nishimura (RDD Japan chief secretariat)2. (Discussion) First,...

28 Feb 2021

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RDD Nara (Japan) image
RDD Nara (Japan)

Medical lecture on  intractable neurological diseasesLecturer: Shinno Clinic Dr. Susumu Kamino, DirectorLecture title: "Let's...

28 Feb 2021 - Nara city western civic center

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RDD Osaka (Japan) image
RDD Osaka (Japan)

Online-social small event

28 Feb 2021

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RDD Shiga (Japan) image
RDD Shiga (Japan)

Now that it is difficult to get together at the Corona disaster, we will collect your voices and create a work of art on...

28 Feb 2021 - Shiga prefecture nanbyo support center

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RDD GBS CIDP (Japan) image
RDD GBS CIDP (Japan)

Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February...

28 Feb 2021

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RDD IWATE (Japan) image
RDD IWATE (Japan)

Held "online-live"  Dialogue with patient families (By invitation only)

28 Feb 2021

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RDD Futaba Mirai Gakuen (Fukushima) image
RDD Futaba Mirai Gakuen (Fukushima)

28 Feb 2021

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RDD Ehime (Japan) image
RDD Ehime (Japan)

12:30 Opening / Watching RDD Japan video13:00 Opening remarks13:05 Self-introduction of participants13:30 Break / Watching...

27 Feb 2021

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RDD TSURUOKA (Yamagata, Japan) image
RDD TSURUOKA (Yamagata, Japan)

Online social events Organizing coloring book projects

27 Feb 2021 - Tsuruoka city advanced research and industrial support center, tsuruoka, yamagata

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RDD Saga (Japan) image
RDD Saga (Japan)

We will have an online tea party using Zoom. Please bring your own tea and favorite snacks by your computer or smartphone.Discussion...

26 Feb 2021

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RDD Hyogo Prefectural Rehabilitation Center at Nishi-Harima (Japan) image
RDD Hyogo Prefectural Rehabilitation Center at Nishi-Harima (Japan)

(1) Screening of contents provided by RDD Japan (2) Online lecture (3) Screening of a video introducing our rehabilitation...

26 Feb 2021 - Hyogo prefectural rehabilitation center at nishi-harima

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RDD Hokkaido (Japan) image
RDD Hokkaido (Japan)

Introduction of activities of the Hokkaido NANBYO regional center  RDD2021 panel display  Others

26 Feb 2021 - Hokkaido prefectural government, sapporo, hokkaido

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RDD Job Fit (Japan) image
RDD Job Fit (Japan)

Part I: Actual Balancing of Treatment and Work in Various Diseases (Roundtable Discussion)Part 2: Information exchange meetings...

25 Feb 2021

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RDD Osaka Meisei Gakuen High school (Japan) image
RDD Osaka Meisei Gakuen High school (Japan)

Program (tentative) Introduction of RDD Study tour by high school students Exchange of opinions with high school students...

20 Feb 2021

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RDD SAITAMA western part (Japan) image
RDD SAITAMA western part (Japan)

Opening - Introduction of social issues related to rare and incurable diseases2. special lecture webinar My Face, My Style...

20 Feb 2021 - 28 Feb 2021

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RDD Kumamoto (Japan) image
RDD Kumamoto (Japan)

Panel Exhibition NANBYO ”Senryu"  exhibition Senryu: a seventeen‐syllable poem that is often satirical of the times.

19 Feb 2021 - 01 Mar 2021 - Kumamoto health cenber

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Release of RDD Japan 2021 introduction movie image
Release of RDD Japan 2021 introduction movie

This is a video introducing RDD Japan 2021. I made it simply with BGM only. Please use it for the opening of official events...

16 Feb 2021 - 28 Feb 2021 - Online

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RDD Press Seminar image
RDD Press Seminar

An RDD press seminar held jointly with Pfizer Japan Inc.

16 Feb 2021

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RDD Tokushima (Japan) image
RDD Tokushima (Japan)

RDD Japan panel exhibition

14 Feb 2021 - 28 Feb 2021 - Tokushima prefectural exchange plaza for the disabled

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RDD Kids (Japan) image
RDD Kids (Japan)

Please get to know ME! Part 1: Let's learn about various diseases!Online Exchange Meeting for Families with Rare Diseases "Regional...

13 Feb 2021

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RDD CHIBA Children Hospital (Japan) image
RDD CHIBA Children Hospital (Japan)

RDD2021 panel exibition

10 Feb 2021 - 28 Feb 2021

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RDD Fukuoka (Japan) image
RDD Fukuoka (Japan)

For the 8th RDD Fukuoka event, we will focus on radio broadcasting on YouTube. We will take the "change" from last year as...

07 Feb 2021 - 28 Feb 2021

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RDD Kitakyushu (Japan) image
RDD Kitakyushu (Japan)

RDD Japan 2021 panel display

02 Feb 2021 - 26 Feb 2021 - Kitakyushu city hall

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RDD rare cancer (Japan) image
RDD rare cancer (Japan)

"Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021" Program ~Rare is Many! Let's learn about rare cancer~February...

01 Feb 2021 - 28 Feb 2021

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RDD Japan kick-off live image
RDD Japan kick-off live

RDD2021 kick-off live On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the archive here...

01 Feb 2021

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RDD Kakogawa Minami High school (Japan) image
RDD Kakogawa Minami High school (Japan)

Exhibition at the Department of General Studies Presentation HallActivity Report (Presentation)

30 Jan 2021 - Kakogawa minami high school

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RDD SAKATA-NISHI Highschool (Yamagata, Japan) image
RDD SAKATA-NISHI Highschool (Yamagata, Japan)

The catch phrase is To the medical professionals and to all people, give ale and kindness!Project 1: #Yell to the front line...

30 Jan 2021 - 28 Feb 2021 - Sakata nishi high school

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