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Rare Disease Day in Iceland

In 2013, Iceland first participated in Rare Disease Day. Since then, there have been educational school visits, appeals to the Icelandic Parliament for greater rare disease support, and donations of equipment to hospitals across the country. In 2015, a 5K run in Reykjavik raised awareness about rare diseases.

On Rare Disease Day 2020, a conference was held for the community covering various topics including talks from a geneticist and a parent of a rare disease patient.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

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