Rare Disease Day in Iceland
In 2013, Iceland first participated in Rare Disease Day. Since then, there have been educational school visits, appeals to the Icelandic Parliament for greater rare disease support, and donations of equipment to hospitals across the country. In 2015, a 5K run in Reykjavik raised awareness about rare diseases. On Rare Disease Day 2017, a group of children living with rare diseases were invited to meet the President at his residence, Bessastaðir. A seminar was also held on the situation of children living with a rare disease in Iceland.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].