Rare Disease Day in India
In India, patient organisations first became involved in Rare Disease Day in 2010. Since then, they've focused on raising awareness and compassion for people living with rare disease through poster campaigns, school visits, competitions, counselling sessions, and more. In 2012, the day attracted mass media attention when Indian star singer Shaan performed at an event.
In 2017, events were held in cities across the country, from Jaipur to Chennai and from Ahmedabad to Thiruvananthapuram. Awareness-raising actions took many different forms, such as a silent march in New Delhi, a press conference in Hyderabad, an online genomics conference, and a 7-kilometre race in Bengaluru, with 7000 participants to represent the more than 7000 rare diseases documented so far. Other highlights included a two-day symposium on rare disease research, as well as a film festival and art camp.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].