India

National Alliance
ORGANIZATION FOR RARE DISEASES INDIA
ORGANIZATION FOR RARE DISEASES INDIA
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India

Rare Disease Day in India

In India, patient organisations first became involved in Rare Disease Day in 2010. Since then, they've focused on raising awareness and compassion for people living with a rare disease all across India through poster campaigns, school visits, competitions, a film festival, counselling sessions, and more. In 2012, the day attracted mass media attention when Indian star singer Shaan performed at an event.

2019 again saw India’s annual ‘Racefor7’ event which took place in Mumbai, Bengaluru and around the Washington Monument in the USA. More than 7000 participants ran a 7km race to represent the more than 7000 rare diseases documented so far. Symposiums and lectures on rare diseases were held around the country at different universities. There was also a Rare Disease Day stakeholder event for patients, health sector companies and policy makers.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 

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