Rare Disease Day in Ireland
Ireland first participated in Rare Disease Day in 2008. Over the years, patient organisations have held public information days and conferences to bring together all patient organisations across the country.
Rare Disease Day 2018 was commemorated with a symposium to explore developments in rare disease research. People living with a rare disease, scientists and policymakers gathered in Dublin to discuss research with specific reference to ‘Innovative Approaches to Rare Diseases’ and ‘Holistic Care in Rare Diseases'.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].