Ireland

National Alliance
RARE DISEASES IRELAND (GRDO)
RARE DISEASES IRELAND (GRDO)
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Ireland

Rare Disease Day in Ireland

Ireland first participated in Rare Disease Day in 2008. Over the years, patient organisations have held public information days and conferences to bring together all patient organisations across the country.

Rare Disease Day 2017 was commemorated with a North/South Conference on Rare Disease in Ireland. People living with a rare disease, scientists and policymakers gathered in Dublin to discuss the current situation with regard to orphan drugs, genomics and genetic services, and national rare disease plans.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

 

 

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