Rare Disease Day in Ireland
Ireland first participated in Rare Disease Day in 2008. Over the years, patient organisations have held public information days and conferences to bring together all patient organisations across the country.
Rare Disease Day 2019 was commemorated with a conference to highlight the importance of joined-up hospital, primary care and community services. The development of a shared research action plan on rare diseases for Ireland also took place, asking individuals living with rare diseases and their families to identify the top 10 research questions currently under-researched in the rare disease community.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].