Rare Disease Day in Hong Kong
Hong Kong first celebrated Rare Disease Day in 2010. Since then, the day has been used as a platform for many awareness-raising activities, including campaigns visiting hospitals to educate both medical students and doctors about rare diseases and the release of a book about children living with a rare disease.
The symposium held in honour of Rare Disease Day 2018 focused on the impact of policy on the lives of people living with a rare disease in order to review Hong Kong’s rare disease policy from the point of view of the core needs of patients. Hong Kong Rare Disease Alliance also held its third annual general meeting.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].