Rare Disease Day in France
France has taken part in Rare Disease Day since its debut in 2008. Key events have included public gatherings in Paris, a book of rare disease patient stories, and the annual awareness raising campaign aboard national trains and in cinemas. There have also been educational programs launched in French public schools and smaller, regional events. Conferences on rare diseases inform the public of ongoing struggles; and information stands run by the National Alliance Maladies Rares have helped to raise awareness in shopping centres, hospitals and churches.
France hosted a huge variety of events to celebrate Rare Disease Day 2020. The events included a national art contest to raise awareness of rare skin diseases, talks and conferences held by patients and the national alliance, a rare walk, information days as well as film debates and viewings for all members of the community. In addition, there were rare disease themed animation booths held in the Gare de Nice, de Strasbourg, du Nord, de Rennes and de Lyon.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].