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Rare Disease Day in France

France has taken part in Rare Disease Day since its debut in 2008. Key events have included public gatherings in Paris, a book of rare disease patient stories, and the annual awareness raising campaign aboard national trains. There have also been educational programs launched in French public schools and smaller, regional events. 

In 2017, events were held across the country. The Rare Disease Day video was broadcast in cinemas nationwide; conferences on rare diseases informed the public of ongoing struggles; and information stands run by the national Alliance Maladies Rares helped to raise awareness in shopping centres, hospitals and churches.  

France is a world leader in its policies for rare diseases. France is currently on its second national plan, ensuring quicker diagnosis of rare diseases and greater access to care.

You can also get involved! Do you know of any events not listed here? Email us at [email protected].

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