NATIONAL ALLIANCE

Europe


Rare Disease Day in Europe


Rare Disease Day was created by EURORDIS-Rare Diseases Europe and its Council of National Alliances in 2008, and it has grown steadily in momentum ever since!

Each year  EURORDIS coordinates Rare Disease Day at the international level, as well as with the National Alliances, patient organisations and other groups at the national and local levels.

European-level institutions, including the European Medicines Agency and the European Commission, lend their support to the day by displaying the Rare Disease Day logo on their websites.

To mark the occasion of Rare Disease Day 2018,  EURORDIS held or supported the organisation of several events at the European level: the EURORDIS Black Pearl Awards, a meeting of the EURORDIS Round Table Companies, the opening of a ‘Rare Lives’ photography exhibition at the European Parliament and a meeting on European Reference Networks, also held at the European Parliament. 



NATIONAL ALLIANCE

FRIENDS IN Europe

Events in Europe


Rare Disease Day 2021 image
Rare Disease Day 2021

https://www.rarediseaseday.org/downloads

28 Feb 2021 - Worldwide

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Rare Disease Day - Second Life image
Rare Disease Day - Second Life

For the first time, we are going to do a charity event for Rare Disease Day in the online virtual world called Second Life.We...

28 Feb 2021 - 01 Mar 2021 - Global event

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Black Pearl Awards 2021 image
Black Pearl Awards 2021

Online. Public registration coming soon!For more information please see the Black Pearl Awards website or email [email protected]

24 Feb 2021 - Digital

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Feb 23 - Final Policy Conference image
Feb 23 - Final Policy Conference

The future of rare diseases starts today - Recommendations from the Rare 2030 Foresight StudyThis event will be the culmination...

23 Feb 2021

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Rare Disease Week image
Rare Disease Week

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.For more information...

22 Feb 2021 - 25 Feb 2021 - Online, brussels

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Faces of CMT image
Faces of CMT

To mark Rare Disease Day 2021, the European CMT Federation is hosting a global ‘Faces of CMT’ Photography competition in...

01 Feb 2021 - 28 Feb 2021

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