Germany

National Alliance
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen
2019 events in Germany
Germany

Rare Disease Day in Germany

In Germany, Rare Disease Day was first celebrated in 2009. The day has garnered support from Mr. Hermann Gröhe, former minister of health; Ms. Johanna Wanka, minister of research; and the former German First Lady Eva Luise Köhler. An annual award, the Eva Luise Köhler Research Award, recognises researchers and health care professionals for their brilliant work for patients with a rare disease. In previous years the day has been marked across Germany by a dance evening, workshops, symposiums and a nationwide photo competition.

Rare Disease Day 2018 again saw a wide variety of events across Germany, from Hannover to Ulm and Heidelberg. Lectures were held on a wide range of topics, for example, research or on the kidney. In addition, people could get creative by making a rare bag both at a workshop or at home with a specially prepared kit. People living with a rare disease were also placed at the forefront in a photo exhibition and at a book event with the author of an autobiographical novel about living with a rare disease.

You can also get involved! Do you know of any events not listed here? Email us at [email protected]rdis.org.

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