Germany

National Alliance
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen
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Germany

Rare Disease Day in Germany

In Germany, Rare Disease Day was first celebrated in 2009. The day has garnered support from Mr. Hermann Gröhe, former minister of health; Ms. Johanna Wanka, minister of research; and the former German First Lady Eva Luise Köhler. An annual award, the Eva Luise Köhler Research Award, recognises researchers and health care professionals for their brilliant work for patients with a rare disease. In previous years the day has been marked across Germany by a dance evening, workshops, symposiums and a nationwide photo competition.

Rare Disease Day 2019 again saw a wide variety of events across Germany, from Hannover to Ulm and Heidelberg. Lectures, panel discussions and workshops were held on a wide range of topics. The German Archaeological Institute put on a workshop on ancient rare diseases to raise awareness and a screening in Heidelberg of the film 'Lorenzos Oil' about a young boy with a rare disease took place.

You can also get involved! Do you know of any events not listed here? Email us at [email protected]

 

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