Germany

National Alliance
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen
ACHSE e. V. Allianz Chronischer Seltener Erkrankungen
2017 events in Germany
Germany

Rare Disease Day in Germany

In Germany, Rare Disease Day was first celebrated in 2009. The day has garnered support from Mr. Hermann Gröhe, minister of health; Ms. Johanna Wanka, minister of research; and the former German First Lady Eva Luise Köhler. An annual award, The Eva Luise Köhler Research Award, recognises researchers and health care professionals for their brilliant work for patients with Rare Diseases.

In 2017, events were held in Berlin and at cities across the country, from a dance evening in Bochum, to a workshop and symposium in Stuttgart, to a benefit concert in Neumünster. A nationwide photo contest encouraged people with a rare disease to take photos of their everyday life, featuring a toy bear. Information booths, lectures and conferences were also organised throughout Germany in order to increase awareness of rare diseases among the general public.

Germany has approved a National Plan which implements better structure for improved understanding, diagnosis, and care in the field of rare diseases.

You can also get involved! Do you know of any events not listed here? Email us at [email protected]

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