Rare Disease Day in Cyprus
Cyprus patient organisations joined Rare Disease Day in its second year, in 2009. Participants have used the day to successfully engage the media in press conferences and therefore increase awareness in the general public. A previous highlight was in 2016 when children living with rare diseases accompanied football players onto the pitch holding a poster, which read ‘Nature made me rare, you can make me strong.’
Similarly to 2017, 2018 Rare Disease Day events included a concert supported by the Ministry of Health and in collaboration with a university. School children also got involved in more than 100 schools across Cyprus by wearing jeans to school and devoting parts of biology lessons to learning about rare diseases as part of a ‘Wear that you care’ campaign. An exciting new initiative in 2018 was the first Small EU countries initiative for rare diseases, which was hosted by Cyprus.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].