Rare Disease Day in Colombia
Colombia first took part in Rare Disease Day in 2009, supporting the campaign through the organisation of various events and activities, such as tree planting, public gatherings, and meetings on rare diseases. In previous years symposiums have been held at universities throughout Colombia, from Cali to Medellin, covering a wide range of issues from diagnosis to genetics.
A highlight of the celebrations in Colombia for the past few years has been the annual gathering of patient organisations, people with rare diseases, government representatives and members of the press at the Parque de Los Novios in Bogotà. Roughly 1500 attended the event which included refreshments, lunch, presentations, live performances and a moment to pay homage to those living with a rare disease. Again as in previous years there was a symposium for health professionals which this year focused on genetics.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].