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Chinese Organization for Rare Disorders
Chinese Organization for Rare Disorders
2018 events in China
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Rare Disease Day in China

China first celebrated Rare Disease Day in 2009 and has a reached a wide audience ever since: a national publicity campaign impacted over 1 million people, summits have gathered over 200 specialists on rare diseases, and advocacy activities have taken place across the country. A particular highlight was the 2016 Chinese Rare Disease Day video called ‘Grateful to have you’.

In 2018 there was a clinic event for people living with a rare disease, their family and experts in different fields who offered advice particularly on diagnosis. The brother of a boy living with a rare disease also raised money by selling chocolates at his school.

You can also get involved! Do you know of any events not listed here? Email us at [email protected].

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