Rare Disease Day in China
China first celebrated Rare Disease Day in 2009 and has a reached a wide audience ever since: a national publicity campaign impacted over 1 million people, summits have gathered over 200 specialists on rare diseases, and advocacy activities have taken place across the country. A particular highlight was the 2016 Chinese Rare Disease Day video called ‘Grateful to have you’.
In 2018 there was a clinic event for people living with a rare disease, their family and experts in different fields who offered advice particularly on diagnosis. The brother of a boy living with a rare disease also raised money by selling chocolates at his school. In 2019, a press conference and two seminars took place in central Beijing, highlighting the use of technology in diagnosis and treatment of rare diseases.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].