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Rare Disease Day in Chile

The Rare Disease Day campaign started in Chile in 2012 and since then art has played a huge role. Highlights include the use of self-portraits of children living with a rare disease to reach out to policy makers for better rare disease legislation and the #1000grullas (#1000cranes) campaign in 2017. According to Japanese legend, cranes represent peace and good health, and folding a thousand paper cranes will make your greatest wish come true. People around the country took photos with their cranes for rare diseases and shared them on social media.

In 2019 the celebrations included a 'Play of Light' memorial, the 'Invaluable Jewels' campaign, recreational activities for children and the chance to interact with patient groups.

You can also get involved! Do you know of any events not listed here? Email us at [email protected]

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