Rare Disease Day in Chile
One highlight of the rare disease campaign in Chile, which began in 2012, was the empowerment programme for children with rare diseases, in which the children drew self-portraits that were later used to reach out to policy makers for better rare disease legislation.
For Rare Disease Day 2017, Chile joined Colombia in choosing the crane as the symbol of the celebration. According to Japanese legend, the birds represent peace and good health, and folding a thousand paper cranes will make your greatest wish come true. People around the country took photos with their cranes for rare diseases, sharing them on social media with the hashtag #1000grullas (“#1000cranes”) and asking for more research and opportunities for people living with a rare disease.
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