Rare Disease Day in Bahrain
2013 was the first annual Rare Disease Day celebration in Bahrain initiated by AL Jawhara Center and Arabian University in collaboration with the Ministry of Health.. Associations took both an educational and an awareness approach, hosting symposiums as well as campaigning publicly in a shopping mall.
In 2019, under the patronage of the Minister of Health, people living with a rare disease and their families met with experts and representatives from the government to initiate more ways to empower and support patients. A documentary screening about rare disease patients took place and children enjoyed a special program including games, contests and educational activities organised by volunteer medical students.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].