Rare Disease Day in Bahrain
2013 was the first annual Rare Disease Day celebration in Bahrain. Associations took both an educational and an awareness approach, hosting symposiums as well as campaigning publicly in a shopping mall.
In 2018 people living with a rare disease and their families met with experts and representatives from the government to initiate more ways to empower and support patients. A seminar also focused on the application of research in clinical practice. Children enjoyed a special program organised by volunteer medical students.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].