Rare Disease Day in Bulgaria
Patient organisations in Bulgaria have participated in Rare Disease Day since the first celebration in 2008. The day was endorsed by the First Lady at the time, Zorka Parvanova, who lent her support publically to the cause. In 2017, events included a march through the streets in Sofia and a joint press conference with the Ministry of Health, at which the creation of a national registry for rare disease patients was announced.
In 2018 Rare Disease Day expanded to include 19 cities in Bulgaria. The finale of the 2018 celebrations was the dancing of the Bulgarian horo.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].