NATIONAL ALLIANCE

NATIONAL ALLIANCE OF PEOPLE WITH RARE DISEASES (NAPRD) logo
NATIONAL ALLIANCE OF PEOPLE WITH RARE DISEASES (NAPRD)

Bulgaria


Rare Disease Day in Bulgaria


Patient organisations in Bulgaria have participated in Rare Disease Day since the first celebration in 2008. The day was endorsed by the First Lady at the time, Zorka Parvanova, who lent her support publically to the cause. In 2017, events included a march through the streets in Sofia and a joint press conference with the Ministry of Health, at which the creation of a national registry for rare disease patients was announced.

In 2020 a balloon launch was organised to celebrate Rare Disease Day. Thousands of balloons were released into the sky symbolising different rare diseases. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].



NATIONAL ALLIANCE

NATIONAL ALLIANCE OF PEOPLE WITH RARE DISEASES (NAPRD) logo
NATIONAL ALLIANCE OF PEOPLE WITH RARE DISEASES (NAPRD)

FRIENDS IN Bulgaria

Events in Bulgaria


National Palace of Culture  in Sofia will be lit in blue, purple, pink and green image
National Palace of Culture in Sofia will be lit in blue, purple, pink and green

On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with rare diseases...

28 Feb 2021 - Sofia

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Онлайн семинар за редки болести image
Онлайн семинар за редки болести

we are happy to announce that on February 27 and 28 we will hold the so-expected Bilateral Seminar with the resource center...

27 Feb 2021 - 28 Feb 2021

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